Anderson B J, Brackett J, Ho J, Laffel L M
Joslin Diabetes Center, Boston, Massachusetts 02215, USA.
Diabetes Care. 1999 May;22(5):713-21. doi: 10.2337/diacare.22.5.713.
To design and evaluate an office-based intervention aimed at maintaining parent-adolescent teamwork in diabetes management tasks without increasing diabetes-related family conflict.
There were 85 patients (aged 10-15 years, mean 12.6 years) with type 1 diabetes (mean duration 5.5 years; mean HbA1c 8.5%) who were randomly assigned to one of three study groups--teamwork, attention control, and standard care--and followed for 24 months. At each visit, parent involvement in insulin administration and blood glucose monitoring was assessed. The teamwork and attention control interventions were integrated into routine ambulatory visits over the first 12 months (four medical visits). Measures of diabetes-related family conflict were collected at baseline and after 12 months. All patients were followed for an additional 12 months with respect to glycemic control.
In the teamwork group, there was no major deterioration (0%) in parent involvement in insulin administration, in contrast to 16% major deterioration in the combined comparison (attention control and standard care) group (P < 0.03). Similarly, no teamwork families showed major deterioration in parent involvement with blood glucose monitoring versus 11% in the comparison group (P < 0.07). On both the Diabetes Family Conflict Scale and the Diabetes Family Behavior Checklist, teamwork families reported significantly less conflict at 12 months. An analysis of HbA1c over the 12- to 24-month follow-up period indicated that more adolescents in the teamwork group (68%) than in the comparison group (47%) improved their HbA1c (P < 0.07).
The data demonstrate that parent involvement in diabetes management tasks can be strengthened through a low-intensity intervention integrated into routine follow-up diabetes care. Moreover, despite increased engagement between teen and parent centered around diabetes tasks, the teamwork families showed decreased diabetes-related family conflict. Within the context of a broader cultural recognition of the protective function of parent involvement in the lives of adolescents, the findings of this study reinforce the potential value of a parent-adolescent partnership in managing chronic disease.
设计并评估一种以门诊为基础的干预措施,旨在维持糖尿病管理任务中父母与青少年的协作,同时不增加与糖尿病相关的家庭冲突。
85例1型糖尿病患者(年龄10 - 15岁,平均12.6岁,平均病程5.5年,平均糖化血红蛋白8.5%)被随机分配到三个研究组之一——协作组、注意力控制组和标准治疗组,并随访24个月。每次就诊时,评估父母在胰岛素注射和血糖监测中的参与情况。协作组和注意力控制组的干预措施在前12个月(四次门诊就诊)融入常规门诊随访。在基线和12个月后收集与糖尿病相关的家庭冲突指标。所有患者在血糖控制方面又随访了12个月。
协作组中,父母在胰岛素注射方面的参与度没有显著下降(0%),而联合对照组(注意力控制组和标准治疗组)中这一比例为16%(P < 0.03)。同样,在协作组中没有家庭在父母参与血糖监测方面出现显著下降,而对照组这一比例为11%(P < 0.07)。在糖尿病家庭冲突量表和糖尿病家庭行为清单上,协作组家庭在12个月时报告的冲突明显更少。对12至24个月随访期内糖化血红蛋白的分析表明,协作组中糖化血红蛋白改善的青少年(68%)多于对照组(47%)(P < 0.07)。
数据表明,通过融入常规糖尿病随访护理的低强度干预,可以加强父母在糖尿病管理任务中的参与度。此外,尽管围绕糖尿病任务青少年与父母之间的互动增加,但协作组家庭与糖尿病相关的家庭冲突减少。在更广泛的文化背景下认识到父母参与青少年生活的保护作用,本研究结果强化了父母 - 青少年伙伴关系在慢性病管理中的潜在价值。