运用定性方法评估针对1型糖尿病的家庭行为干预措施。
Using qualitative methods to evaluate a family behavioral intervention for type 1 diabetes.
作者信息
Herbert Linda Jones, Sweenie Rachel, Kelly Katherine Patterson, Holmes Clarissa, Streisand Randi
出版信息
J Pediatr Health Care. 2014 Sep-Oct;28(5):376-85. doi: 10.1016/j.pedhc.2013.09.002. Epub 2013 Oct 24.
INTRODUCTION
The objectives of this study were to qualitatively evaluate a dyadic adolescent-parent type 1 diabetes (T1D) program developed to prevent deterioration in diabetes care among adolescents with T1D and provide recommendations for program refinement.
METHOD
Thirteen adolescent-parent dyads who participated in the larger randomized controlled trial, the TeamWork Project, were interviewed regarding their perceptions of their participation in the program and current T1D challenges. Interviews were transcribed and coded to establish broad themes.
RESULTS
Adolescents and parents thought the TeamWork Project sessions were helpful and taught them new information. Five themes catalog findings from the qualitative interviews: TeamWork content, TeamWork structure, transition of responsibility, current and future challenges, and future intervention considerations.
DISCUSSION
Addressing T1D challenges as a parent-adolescent dyad via a behavioral clinic program is helpful to families during adolescence. Findings highlight the utility of qualitative evaluation to tailor interventions for the unique challenges related to pediatric chronic illness.
引言
本研究的目的是对一项针对青少年-父母二元组的1型糖尿病（T1D）项目进行定性评估，该项目旨在防止T1D青少年的糖尿病护理恶化，并为项目改进提供建议。
方法
对参与更大规模随机对照试验“团队合作项目”的13对青少年-父母二元组进行访谈，询问他们对参与该项目的看法以及当前T1D面临的挑战。访谈内容被转录并编码以确定广泛的主题。
结果
青少年和父母认为“团队合作项目”的课程很有帮助，并教会了他们新的信息。五个主题梳理了定性访谈的结果：团队合作内容、团队合作结构、责任过渡、当前和未来的挑战以及未来干预的考虑因素。
讨论
通过行为诊所项目将T1D挑战作为父母-青少年二元组来应对，对青少年时期的家庭是有帮助的。研究结果凸显了定性评估对于针对儿科慢性病独特挑战定制干预措施的效用。
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