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慢性病中的疲劳:慢性阻塞性肺疾病和哮喘患者的体验

Fatigue in chronic illness: the experience of individuals with chronic obstructive pulmonary disease and with asthma.

作者信息

Small S, Lamb M

机构信息

School of Nursing, Memorial University of Newfoundland, St John's, Newfoundland, Canada.

出版信息

J Adv Nurs. 1999 Aug;30(2):469-78. doi: 10.1046/j.1365-2648.1999.01102.x.

Abstract

Although fatigue has been identified as a major problem for individuals with chronic obstructive pulmonary disease and with asthma, no research was found in which the symptom was directly studied in persons with these conditions. From studies carried out on various patient populations, it appears that fatigue has some specificity to disease state. Thus, it is important to describe the experience of fatigue within patient populations. To expand theoretical understanding of fatigue, qualitative research methods need to be applied. The purpose of this study therefore was to describe and compare the fatigue experiences of persons with chronic obstructive pulmonary disease (n=17) and with asthma (n=19). Data were obtained by use of a semi-structured questionnaire and were content analysed for categories and themes. There were many similarities between the fatigue experiences of the two groups. Fatigue is inextricably linked to laboured breathing. Although it interferes with their ability to carry out meaningful activities, the majority of individuals with chronic obstructive pulmonary disease or asthma cope well with it. The informants identified two types of coping strategies they use to manage their situation, which may be categorized as: problem-focused, including energy conservation, utilization and restoration; and emotion-focused, including being positive, accepting the physical limitations, distracting and normalizing.

摘要

尽管疲劳已被确认为慢性阻塞性肺疾病和哮喘患者的一个主要问题,但未发现有研究直接针对患有这些疾病的人群对该症状进行研究。从针对不同患者群体开展的研究来看,疲劳似乎对疾病状态具有一定的特异性。因此,描述患者群体中疲劳的体验很重要。为了扩展对疲劳的理论认识,需要应用定性研究方法。因此,本研究的目的是描述和比较慢性阻塞性肺疾病患者(n = 17)和哮喘患者(n = 19)的疲劳体验。通过使用半结构化问卷获取数据,并对内容进行分类和主题分析。两组患者的疲劳体验有许多相似之处。疲劳与呼吸困难紧密相连。尽管疲劳会干扰他们开展有意义活动的能力,但大多数慢性阻塞性肺疾病或哮喘患者都能很好地应对。受访者确定了他们用来应对自身状况的两种应对策略,可分为:以问题为中心的策略,包括节省、利用和恢复精力;以及以情绪为中心的策略,包括保持积极心态、接受身体限制、分散注意力和正常化。

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