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应对白癜风的毁容影响:认知行为疗法效果的初步调查

Coping with the disfiguring effects of vitiligo: a preliminary investigation into the effects of cognitive-behavioural therapy.

作者信息

Papadopoulos L, Bor R, Legg C

机构信息

Department of Psychology, London Guildhall University, UK.

出版信息

Br J Med Psychol. 1999 Sep;72(3):385-96. doi: 10.1348/000711299160077.

DOI:10.1348/000711299160077
PMID:10524722
Abstract

Vitiligo is a progressive condition involving a loss of pigmentation in the skin; it can be disfiguring and no effective treatment or cure exists. Although vitiligo's medical effects have been studied extensively, little attention has been paid to its psychological impact or to the effects of psychological state on the illness itself. To address these issues, the present study examined the effect of cognitive behavioural therapy on coping with vitiligo and adaptation to the negative effects on body image, quality of life and self-esteem in adult patients. The study also examined whether any psychological gains acquired from psychological therapy would influence the progression of the condition itself. Two matched groups of vitiligo patients were compared, one of which received cognitive-behavioural therapy over a period of 8 weeks, while the other received no changes to their treatment status. All patients were assessed on self-esteem, body image and quality of life, prior to, immediately following and 5 months following the end of therapy. The progression of the condition was assessed by photographing patients prior to the start of counselling and 5 months following counselling. Results suggest that patients can benefit from cognitive behavioural therapy in terms of coping and living with vitiligo. There is also preliminary evidence to suggest that psychological therapy may have a positive effect on the progression of the condition itself. Implications for incorporating psychological counselling into patient care and management are discussed.

摘要

白癜风是一种进行性疾病,表现为皮肤色素脱失;它会影响容貌,且目前尚无有效的治疗方法或治愈手段。尽管对白癜风的医学影响已进行了广泛研究,但对其心理影响或心理状态对疾病本身的影响却鲜有关注。为解决这些问题,本研究考察了认知行为疗法对成年白癜风患者应对疾病以及适应身体形象、生活质量和自尊方面负面影响的效果。该研究还考察了从心理治疗中获得的任何心理收益是否会影响疾病本身的进展。研究比较了两组匹配的白癜风患者,其中一组接受了为期8周的认知行为疗法,而另一组的治疗状况未作改变。在治疗开始前、治疗结束后即刻以及治疗结束5个月后,对所有患者的自尊、身体形象和生活质量进行了评估。通过在咨询开始前和咨询5个月后为患者拍照来评估病情进展。结果表明,患者在应对和面对白癜风方面可从认知行为疗法中获益。也有初步证据表明,心理治疗可能对疾病本身的进展产生积极影响。文中讨论了将心理咨询纳入患者护理和管理的意义。

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