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揭示无形的挣扎:白癜风对心理、社会及生活质量影响的全面综述

Unveiling the Unseen Struggles: A Comprehensive Review of Vitiligo's Psychological, Social, and Quality of Life Impacts.

作者信息

Salama Abdelaziz H, Alnemr Lujain, Khan Ahmad R, Alfakeer Hussein, Aleem Zoha, Ali-Alkhateeb Mohamed

机构信息

Medical School, Hamidiye International School of Medicine, University of Health Sciences, Istanbul, TUR.

Internal Medicine, University Hospital Limerick, Limerick , IRL.

出版信息

Cureus. 2023 Sep 11;15(9):e45030. doi: 10.7759/cureus.45030. eCollection 2023 Sep.

Abstract

This review explores the psychosocial impact of vitiligo on patients, its consequences for their quality of life, and the need for holistic support. Vitiligo's psychosocial burden, driven by the need to conceal lesions and societal beauty ideals, leads to stress, sadness, and low self-esteem. Social stigma affects self-esteem, especially in cultural contexts, exacerbating the need for culturally sensitive support. Anxiety and depression are common due to visible differences and societal pressures. Vitiligo significantly reduces the quality of life, especially in younger patients, impacting daily activities, careers, and relationships. Disease severity worsens these effects, particularly in visible areas and among individuals with darker skin tones. Long-term disease activity may improve acceptance and quality of life. Psychological support and counseling are crucial, as many patients don't seek medical help. Education plays a key role, improving understanding and reducing anxiety. Raising awareness about the impact of vitiligo can challenge perceptions and contribute to enhancing patients' well-being. In conclusion, this review highlights the interplay between psychosocial factors, quality of life, and the importance of addressing social stigma, providing psychological support, and advancing education and awareness for those with vitiligo.

摘要

本综述探讨了白癜风对患者的心理社会影响、其对患者生活质量的后果以及提供全面支持的必要性。由于需要遮盖皮损和社会审美观念的影响,白癜风的心理社会负担会导致压力、悲伤和自卑。社会污名会影响自尊,尤其是在特定文化背景下,这加剧了对具有文化敏感性支持的需求。由于明显的差异和社会压力,焦虑和抑郁很常见。白癜风会显著降低生活质量,尤其是对年轻患者而言,会影响日常活动、职业和人际关系。疾病严重程度会加剧这些影响,特别是在暴露部位以及肤色较深的个体中。长期的疾病活动可能会提高患者的接受度和生活质量。心理支持和咨询至关重要,因为许多患者并不寻求医疗帮助。教育起着关键作用,能增进理解并减轻焦虑。提高对白癜风影响的认识可以改变观念,并有助于提升患者的幸福感。总之,本综述强调了心理社会因素、生活质量之间的相互作用,以及消除社会污名、提供心理支持和推进针对白癜风患者的教育与认知的重要性。

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本文引用的文献

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Update on the pathogenesis of vitiligo.白癜风发病机制的最新研究进展。
An Bras Dermatol. 2022 Jul-Aug;97(4):478-490. doi: 10.1016/j.abd.2021.09.008. Epub 2022 May 25.
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Psychosocial Effects of Vitiligo: A Systematic Literature Review.白癜风的社会心理影响:系统文献回顾。
Am J Clin Dermatol. 2021 Nov;22(6):757-774. doi: 10.1007/s40257-021-00631-6. Epub 2021 Sep 23.
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Vitiligo and anxiety: A systematic review and meta-analysis.白癜风与焦虑:系统评价与荟萃分析。
PLoS One. 2020 Nov 10;15(11):e0241445. doi: 10.1371/journal.pone.0241445. eCollection 2020.
8
Vitiligo: A Review.白癜风:综述。
Dermatology. 2020;236(6):571-592. doi: 10.1159/000506103. Epub 2020 Mar 10.

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