Suppr超能文献

儿童癌症的亲身经历:一位兄弟姐妹的视角。

The lived experience of childhood cancer: one sibling's perspective.

作者信息

Murray J S

机构信息

University of Texas at Austin.

出版信息

Issues Compr Pediatr Nurs. 1998 Oct-Dec;21(4):217-27. doi: 10.1080/014608698265429.

Abstract

The demands of cancer on children and their parents have been studied and understood for many years now. However, very little focus has been placed on one other very important part of the family system--the siblings. In the health care profession today, there is a growing awareness that the psychosocial needs of siblings of children with cancer are less adequately met than those of other family members. Research suggests that siblings are particularly vulnerable to adjustment difficulties (depression, anger, anxiety, feelings of guilt, and social isolation), and they experience similar stress to that of the ill child Siblings have been identified as the most emotionally neglected and unhappy of all family members during serious childhood illnesses. The purpose of this study was to gain a better understanding of the lived experience of one 14-year-old sibling's experience with childhood cancer. Through the qualitative research process of phenomenology, the researcher gained a greater understanding of the participant's experience and how the childhood cancer experiences affected her and her family. Themes that emerged through the process of content analysis included emotional intensity, increased empathy for others, personal growth, need for support, and desire to help others.

摘要

多年来,人们一直在研究和了解癌症对儿童及其父母的影响。然而,家庭系统中另一个非常重要的部分——兄弟姐妹,却很少受到关注。在当今的医疗保健行业,人们越来越意识到,患癌儿童的兄弟姐妹的心理社会需求比其他家庭成员的需求更难以得到充分满足。研究表明,兄弟姐妹特别容易出现适应困难(抑郁、愤怒、焦虑、内疚感和社会孤立感),他们所经历的压力与患病儿童相似。在儿童患重病期间,兄弟姐妹被认为是所有家庭成员中在情感上最被忽视且最不快乐的。本研究的目的是更好地了解一名14岁患癌儿童的兄弟姐妹的生活经历。通过现象学的定性研究过程,研究者对参与者的经历以及儿童癌症经历如何影响她和她的家庭有了更深入的了解。通过内容分析过程浮现出的主题包括情感强度、对他人同理心的增强、个人成长、对支持的需求以及帮助他人的愿望。

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验