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面对癌症的父母及其子女:父母的期望,肿瘤疾病患儿照料者眼中家庭功能的变化——进一步研究

Parents and Their Children in the Face of Cancer: Parents' Expectations, Changes in Family Functioning in the Opinion of Caregivers of Children with Neoplastic Diseases-Further Studies.

作者信息

Lewandowska Anna

机构信息

Institute of Healthcare, State School of Technology and Economics, 37-500 Jarosław, Poland.

出版信息

Children (Basel). 2022 Oct 15;9(10):1562. doi: 10.3390/children9101562.

Abstract

(1) Background: The onset and duration of the child's illness is a difficult test for the entire family. The stress, in which the family lives from this moment, influences the relationships within it, as well as external relations with the environment. The child's cancer fundamentally changes the way the family functions, the quality of interactions within the family, and life plans. (2) Patients and Approach: A population survey was run between 2015 and 2020. A cross-sectional study was conducted involving 800 family caregivers of children with cancer during active treatment. The aim of the study was to assess changes in the family functioning in the opinion of parents of a child with cancer. (3) Results: Parents experience chronic anxiety (67%), nervousness (60%), and worry (64%). For 50% of parents, the illness of their child entirely changed their plans. As many as 75% of parents feel guilty for exposing their child to carcinogens. According to the parents, the child's illness is a psychological (89%), somatic (49%) and financial (77%) burden for them. Only 7% of children cause behavioural problems and 16% have trouble learning due to their sibling's illness. (4) Conclusions: Cancer is a great difficulty for all members of a family system. The disease disturbs the balance within the family and relations in the family, as well as more distant psychological, social, and material consequences.

摘要

(1) 背景:孩子患病的起病情况和病程对整个家庭来说都是一场严峻考验。从这一刻起,家庭所处的压力环境会影响家庭内部的关系以及与外界环境的关系。孩子患癌症从根本上改变了家庭的运作方式、家庭内部的互动质量以及生活规划。(2) 患者与方法:在2015年至2020年期间开展了一项人口调查。对800名正在接受积极治疗的癌症患儿的家庭照料者进行了一项横断面研究。该研究的目的是评估癌症患儿家长眼中家庭功能的变化。(3) 结果:家长们经历着长期焦虑(67%)、紧张(60%)和担忧(64%)。对于50%的家长而言,孩子的疾病完全改变了他们的计划。多达75%的家长因让孩子接触致癌物而感到内疚。据家长们反映,孩子的疾病对他们来说是一种心理负担(89%)、身体负担(49%)和经济负担(77%)。只有7%的孩子因兄弟姐妹患病而出现行为问题,16%的孩子在学习上遇到困难。(4) 结论:癌症对家庭系统的所有成员来说都是巨大的困难。这种疾病扰乱了家庭内部的平衡和家庭关系,以及更深远的心理、社会和物质层面的影响。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bbb3/9600004/5455970b5220/children-09-01562-g001.jpg

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