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儿童慢性病对兄弟姐妹的影响:文献综述

Impact of childhood chronic illnesses on siblings: a literature review.

作者信息

O' Brien Irene, Duffy Anita, Nicholl Honor

机构信息

Our Lady's Children's Hospital, Crumlin, Dublin.

出版信息

Br J Nurs. 2009;18(22):1358, 1360-5. doi: 10.12968/bjon.2009.18.22.45562.

DOI:10.12968/bjon.2009.18.22.45562
PMID:20081690
Abstract

BACKGROUND

Childhood illness can have a significant impact on families, particularly on the ill child's siblings. There is a dearth of published literature focusing on the needs of siblings of ill children.

AIM

This literature review aims to provide an overview of the current healthcare literature in relation to the impact of childhood chronic illness or disability on siblings.

METHOD

A literature review was undertaken by searching the databases CINAHL, PsycINFO, ProQuest and Cochrane Library for relevant articles in English using the search terms: 'siblings', 'chronic illness', 'disability', 'cancer', 'sibling relations', 'sibling adjustment', 'coping', 'family-centred care', 'sibling interventions', 'camps', 'autism', 'Down's syndrome'. Seventeen research studies in total were reviewed.

RESULTS

This review focuses on three sibling groups related to children suffering from autism, cancer and Down's syndrome, and are discussed under the following headings: sibling adjustment; family functioning and sibling's coping resources; and intervention programmes.

CONCLUSION

The literature revealed that siblings of children with Down's syndrome were well adjusted to living with their brother or sister. However, there was conflicting information on the adjustment of siblings of children with cancer and autism. An awareness of the harmful effect that living with childhood illness and disability can have on some siblings is essential to enable healthcare professionals to provide supportive interventions to protect siblings' physical and emotional wellbeing.

摘要

背景

儿童疾病会对家庭产生重大影响,尤其是对患病儿童的兄弟姐妹。目前针对患病儿童兄弟姐妹需求的已发表文献较为匮乏。

目的

本综述旨在概述当前医疗保健文献中有关儿童慢性病或残疾对兄弟姐妹影响的内容。

方法

通过在CINAHL、PsycINFO、ProQuest和Cochrane图书馆数据库中搜索英文相关文章进行文献综述,搜索词为:“兄弟姐妹”、“慢性病”、“残疾”、“癌症”、“兄弟姐妹关系”、“兄弟姐妹适应”、“应对”、“以家庭为中心的护理”、“兄弟姐妹干预”、“营地”、“自闭症”、“唐氏综合征”。总共审查了17项研究。

结果

本综述聚焦于与患有自闭症、癌症和唐氏综合征儿童相关的三组兄弟姐妹,并在以下标题下进行讨论:兄弟姐妹适应;家庭功能与兄弟姐妹的应对资源;以及干预项目。

结论

文献显示,唐氏综合征患儿的兄弟姐妹能很好地适应与患病兄弟姐妹共同生活。然而,关于癌症和自闭症患儿兄弟姐妹的适应情况存在相互矛盾的信息。认识到与儿童疾病和残疾共同生活可能对一些兄弟姐妹产生的有害影响,对于医疗保健专业人员提供支持性干预措施以保护兄弟姐妹的身心健康至关重要。

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Impact of childhood chronic illnesses on siblings: a literature review.儿童慢性病对兄弟姐妹的影响:文献综述
Br J Nurs. 2009;18(22):1358, 1360-5. doi: 10.12968/bjon.2009.18.22.45562.
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The sibling experience of living with childhood chronic illness and disability.与童年慢性病和残疾共处的兄弟姐妹经历。
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J Intellect Disabil Res. 2006 Dec;50(Pt 12):937-48. doi: 10.1111/j.1365-2788.2006.00928.x.
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Psychological adaptation of siblings of chronically ill children: research and practice implications.慢性病患儿兄弟姐妹的心理适应:研究及实践启示
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Well siblings of children with chronic illness: A synthesis research study.慢性病患儿的兄弟姐妹:一项综合研究。
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