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青少年及其父母对青少年慢性关节炎的管理能力认知:一份用于评估医疗问题、运动、疼痛及社会支持的问卷的编制

Perceived ability to manage juvenile chronic arthritis among adolescents and parents: development of a questionnaire to assess medical issues, exercise, pain, and social support.

作者信息

André M, Hedengren E, Hagelberg S, Stenström C H

机构信息

Department of Women and Child Health, Karolinska Institutet, Huddinge, Sweden.

出版信息

Arthritis Care Res. 1999 Aug;12(4):229-37.

PMID:10689987
Abstract

OBJECTIVE

To develop a questionnaire to assess perceived ability to manage juvenile chronic arthritis (JCA) among adolescents and parents.

METHODS

The questionnaire contained 24 (parents' version) and 23 (adolescents' version) questions accompanied by visual analog scales in the areas of knowledge, skill, behavior, attitudes, and self-efficacy. One hundred seven persons participated in the examination of validity and 25 in the examination of test-retest reliability.

RESULTS

Factor analyses indicated that the questionnaire, now termed the MEPS (abbreviation for "medical issues, exercise, pain, and social support") questionnaire, contained 4 underlying dimensions: medical issues, exercise, pain, and social support, including 9, 4, 7, and 4 questions, respectively. The content of the questionnaire was judged mainly to be easily understood, relevant, and exhaustive. Intraclass correlation coefficients for the test-retest reliability of the questionnaire answers over a week ranged from 0.68 to 0.96 for single questions.

CONCLUSION

The MEPS questionnaire appears to be a valid and reliable tool for assessing the perceived ability to manage JCA. Whether it is sufficiently responsive to interventions remains to be investigated.

摘要

目的

编制一份问卷,以评估青少年及其父母对青少年慢性关节炎(JCA)的自我管理能力认知。

方法

问卷包含24个问题(家长版)和23个问题(青少年版),并在知识、技能、行为、态度和自我效能等方面配备视觉模拟量表。107人参与了效度检验,25人参与了重测信度检验。

结果

因子分析表明,该问卷现称为MEPS(“医疗问题、运动、疼痛和社会支持”的缩写)问卷,包含4个潜在维度:医疗问题、运动、疼痛和社会支持,分别包括9个、4个、7个和4个问题。问卷内容经判断主要易于理解、相关且详尽。问卷答案在一周内的重测信度的组内相关系数,单个问题范围为0.68至0.96。

结论

MEPS问卷似乎是评估JCA自我管理能力认知的有效且可靠工具。它对干预措施的反应是否充分仍有待研究。

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