Brooks N
Intensive Crit Care Nurs. 2000 Feb;16(1):18-32. doi: 10.1054/iccn.2000.1464.
This study was designed to identify and measure the patients' perspective of the concept quality of life within the context of a high-dependency unit (HDU). Data were collected in two phases. In phase one, 55 patients were interviewed, which resulted in the concept clarification of quality of life as: physical, social, psychological and family/friends. In phase two, 51 patients undertook quality-of-life assessment using validated instruments the Quality of Life Index (Ferrans & Powers 1985) and the Global Quality of Life Scale (Hyland & Sodergren 1997). Post-HDU patients demonstrated improvements upon pre-admission scores in both instruments (the social domain in the quality of life index being the exception), although this only reached statistical significance P<0.05 in the overall index score and within the domains of health and family. When exploring variables of age and severity of illness (Apache 2 score, Knaus et al. 1980) it was the people who were older and physiologically compromised to an increased extent (P<0.05) who demonstrated higher levels of satisfaction with their resulting quality of life. This study has been successful in providing patients with an opportunity to participate more actively in service evaluation and has identified the need for future evaluation of HDUs to move beyond physiological measures, to incorporate the impact that illness leading to admission to an HDU has upon the patients' ability to function and their resulting quality of life.
本研究旨在确定并衡量患者在高依赖病房(HDU)背景下对生活质量概念的看法。数据收集分两个阶段进行。在第一阶段,对55名患者进行了访谈,结果明确了生活质量的概念,即身体、社会、心理以及家庭/朋友方面。在第二阶段,51名患者使用经过验证的工具——生活质量指数(费兰斯和鲍尔斯,1985年)以及全球生活质量量表(海兰和索德格伦,1997年)进行了生活质量评估。HDU出院后的患者在这两种工具上的得分均比入院前有所提高(生活质量指数中的社会领域除外),不过只有总体指数得分以及健康和家庭领域达到了统计学显著性水平P<0.05。在探究年龄和疾病严重程度变量(阿帕奇Ⅱ评分,克瑙斯等人,1980年)时发现,年龄较大且生理功能受损程度更高(P<0.05)的患者对其生活质量的满意度更高。本研究成功地为患者提供了更积极参与服务评估的机会,并确定了未来对HDU进行评估时需要超越生理指标,纳入导致患者入住HDU的疾病对其功能能力和生活质量的影响。