Landoni M G, Giordano M T, Guidetti G P
Clinical Psychology and Psychotherapy Service, Don C. Gnocchi Foundation - Onlus, IRCCS, Via Capecelatro, 66, 20148 Milan, Italy.
J Neurovirol. 2000 May;6 Suppl 2:S168-71.
In this article we describe our experience of group psychotherapy for patients afflicted with multiple sclerosis in the care of the Centre of Multiple Sclerosis of the Don Gnocchi Foundation in Milan, and an experience of psychological support to the patients' families. Multiple sclerosis, with its disability, chronic and unforeseeable features, brings about a series of changes in the patient's life. Considering the youthful age during which the disease arises, patients are obliged to review their own life plans in their family, social and working circles and have to face living with the chronicity and the loss of their own autonomy. Group psychotherapy was qualified as a preferred ambit to express and to share individual problems. The disease also involves the family: relatives must revise certains plans and projects made before. Psychological support could help relatives not only with the emotional load following on from the disease so that they do not feel alone in the patient's everyday care, but also with their own emotional management, in order to give them a listening space also for their distresses and fears.
在本文中，我们描述了在米兰唐·诺基基金会多发性硬化症中心为多发性硬化症患者提供团体心理治疗的经验，以及为患者家属提供心理支持的经验。多发性硬化症具有致残、慢性和不可预测的特点，给患者的生活带来了一系列变化。考虑到发病时患者较为年轻，他们不得不重新审视自己在家庭、社会和工作圈子中的生活计划，并且不得不面对疾病的慢性病程以及失去自身自主性的状况。团体心理治疗被视为表达和分享个人问题的首选途径。疾病也会影响到家庭：亲属必须重新调整之前制定的某些计划和项目。心理支持不仅可以帮助亲属应对疾病带来的情感负担，使他们在日常照顾患者时不感到孤单，还能帮助他们进行自身的情绪管理，以便为他们提供一个倾诉痛苦和恐惧的倾听空间。
