Hauerwas S
Am J Med Sci. 1975 Mar-Apr;269(2):223-36.
Decisions regarding the care of deformed and retarded infants pose difficult ethical and moral dilemmas for both physicians and parents. Ethical inquiry regarding such questions must be concerned with how we see and understand the dilemma for conceptualization of the problem often shapes the decisions that are made. The fundamental issue that provides the background for the kind and amount of care defective newborns should receive is the obligation parents have to care for their children. New medical technology has so extended the limits of care that the extent of parental (and societal) obligation is unclear. In dealing with the problem of defective newborns, the action of both physicians and parents is determined in part by concern to act in a manner congruent with assumed roles and identity. With no moral consensus regarding the care of defective newborns, the doctor is put in a precarious position. What is revealed is how dependent medicine is on its underlying moral community to give it moral direction in instances of ambiguity and uncertainty.
对于畸形和智力发育迟缓婴儿的护理决策,给医生和家长都带来了艰难的伦理和道德困境。关于此类问题的伦理探究必须关注我们如何看待和理解这一困境,因为对问题的概念化往往会影响所做出的决策。为有缺陷新生儿应提供何种护理以及多少护理这一问题提供背景的根本问题,是父母照顾子女的义务。新的医疗技术极大地扩展了护理的范围,以至于父母(以及社会)义务的范围变得不明确。在处理有缺陷新生儿的问题时,医生和父母的行动部分取决于他们希望以符合既定角色和身份的方式行事。由于在有缺陷新生儿护理问题上没有道德共识,医生陷入了岌岌可危的境地。这揭示了医学在多大程度上依赖其潜在的道德共同体,以便在存在模糊性和不确定性的情况下为其提供道德指引。