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照顾有缺陷新生儿中的家庭伦理。

Family ethics in caring for newborns with impairments.

作者信息

Post S G

出版信息

Health Prog. 1987 Jun;68(5):57-61.

Abstract

The technological advances of modern society mean that family members have expanded obligations to care for newborns with severe impairments, who would have died in previous eras. This biological imbalance has created a moral one as well, for to care is to be penalized. Often this moral heroism can be sustained as a vacation only in communities based on the ideal of Christian love. Severely impaired children impose great physical and emotional stress on their parents, which can push the parents to the limits if they are unable to tap into altruistic emotions. Historically, children were not accorded moral status in the West until the Christian influence brought them into the moral community and encouraged parental responsibility. To fulfill their obligations, perhaps parents should bring their child with impairments home and relinquish care only when they find the burden too great. They are obligated to try because they brought the child into existence (biological-causal argument), because this caring is a reflection of God's image, and because children have a moral claim on their parents. Limits to parental obligations exist when continued care would be psychologically destructive for the parents, would conflict with obligations to other family members, particularly siblings, or would be harmful to the child because the atmosphere is no longer nurturing and loving.

摘要

现代社会的技术进步意味着家庭成员照顾重度残疾新生儿的义务增加了,而在过去这些新生儿可能会夭折。这种生理上的失衡也造成了一种道德上的失衡,因为照顾会受到惩罚。通常,只有在基于基督教爱的理想的社区中,这种道德英雄主义才能像度假一样得以维持。重度残疾儿童给他们的父母带来了巨大的身体和情感压力,如果父母无法激发利他情感,这种压力可能会将他们逼到极限。从历史上看,在西方,儿童直到受到基督教影响被纳入道德共同体并鼓励父母承担责任后,才被赋予道德地位。为了履行义务,也许父母应该把残疾孩子带回家,只有当他们觉得负担过重时才放弃照顾。他们有义务尝试,因为是他们让孩子来到这个世上(生物因果论证),因为这种照顾是上帝形象的一种体现,还因为孩子对父母有道德诉求。当持续照顾会对父母造成心理伤害、与对其他家庭成员尤其是兄弟姐妹的义务相冲突,或者因为家庭氛围不再是养育和关爱的而对孩子有害时,父母的义务就存在限度。

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