Botsford A L
Marist College, Poughkeepsie, NY 12601, USA.
Soc Work Health Care. 2000;31(1):35-48. doi: 10.1300/J010v31n01_03.
End-of-life issues encompass old age, terminal illness, dying, grief, mourning and bereavement. Such issues have broad impact on older adults with intellectual deficits, their families, friends, roommates, and formal caregivers. As increasing numbers of people with a intellectual disability survive into old age, social workers regularly encounter end of life situations among very diverse individuals. Social workers in hospices, hospitals, and home care agencies are also asking how best to support people confronting the deaths of aging parents and family, housemates, friends, and staff, as well as their own terminal illnesses and dying. The history of care for people' with a disability documents their exclusion from supportive rituals and education about the end of life. Although existing systems of care continue to negatively impact people at the end of life, resources designed to assist people have expanded in the last decade. End of life education, grief counseling, bereavement services, support groups, crisis teams, and end of life committees are some of the strategies for providing more responsive end of life care.
临终问题涵盖老年、绝症、死亡、悲伤、哀悼和丧亲之痛。这些问题对有智力缺陷的老年人、他们的家人、朋友、室友以及正式护理人员都有广泛影响。随着越来越多的智障人士活到老年，社会工作者经常在非常多样化的个体中遇到临终情况。临终关怀机构、医院和家庭护理机构的社会工作者也在询问，如何最好地支持那些面对年迈父母和家人、室友、朋友及工作人员死亡的人，以及面对自身绝症和死亡的人。对残疾人的护理历史记录了他们被排除在支持性仪式和临终教育之外的情况。尽管现有的护理体系在临终时仍对人们产生负面影响，但在过去十年中，旨在帮助人们的资源有所增加。临终教育、悲伤咨询、丧亲服务、支持小组、危机团队和临终委员会是提供更具响应性的临终护理的一些策略。
