Expectations of health, independence, and quality of life among aging spinal cord-injured adults.

While our understanding of aging and mortality in spinal cord injury is evolving, precise estimates are still not available to assist people with spinal cord injuries in knowing what to expect as they grow older. The work of a number of authors suggests that the life expectancy of those with spinal cord injuries is improving. However, little is known about the conditions in which individuals may expect to spend their remaining years of life. This study used information from a 50-year database on spinal cord injury, in combination with national mortality statistics and new survey information, to estimate the number of remaining years that individuals could expect to spend in a variety of states of health, independence, and quality of life. The study showed that expectations of health are similar to those found in the general population. Regardless of total life expectancy, individuals could expect to spend about six of their remaining years in poor health, presumably near the end of life. Expectations of independence varied depending on lesion level. Those with paraplegia became less independent over time, moving from complete to modified independence. Those with quadriplegia appeared to have a greater expectation of independence over time; however, in actuality, only those who were most independent survived to report outcomes at older ages. Expectations of quality of life remained high until the fifth decade postinjury.