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香港创伤性脊髓损伤患者的生活质量

Quality of life of traumatic spinal cord injured patients in Hong Kong.

作者信息

Hu Yong, Mak Joseph N F, Wong Yat Wa, Leong John C Y, Luk Keith D K

机构信息

Department of Orthopaedics and Traumatology, The University of Hong Kong, Pokfulam.

出版信息

J Rehabil Med. 2008 Feb;40(2):126-31. doi: 10.2340/16501977-0150.

Abstract

OBJECTIVE

To assess the health-related quality of life of patients with traumatic spinal cord injury living in Hong Kong.

DESIGN

A cross-sectional retrospective study.

SUBJECTS

Subjects with paraplegia following traumatic spinal cord injury were recruited from our department, which is one of the 3 main regional spinal cord injury rehabilitation centres in Hong Kong. A total of 120 potential participants were invited to join the study. The final study group comprised 58 patients (25 (43%) men and 33 (57%) women, 30 (50%) of whom were under 40 years of age).

METHODS

Health-related quality of life was assessed using the Hong Kong Chinese version of the World Health Organization Quality of Life Measure Abbreviated version (WHO-QOL-BREF(HK)). Results were summarized and compared with previous results from healthy and other disease populations in Hong Kong.

RESULTS

There was no significant difference in quality of life between men and women, or between different durations of spinal cord injury, different educational levels or different marital status (p > 0.05). However, a significant difference in quality of life was found in different age groups and between people with incomplete and complete paraplegia (p < 0.05). Compared with healthy and other disease populations, people with paraplegia had the lowest quality of life in Hong Kong (p < 0.001).

CONCLUSION

People with paraplegia in Hong Kong have a lower quality of life than the general Hong Kong population. More community support is required to meet the needs of these patients in the areas of transportation, medical care and social life, in particular.

摘要

目的

评估居住在香港的创伤性脊髓损伤患者的健康相关生活质量。

设计

一项横断面回顾性研究。

研究对象

从我们科室招募创伤性脊髓损伤后截瘫的患者,我们科室是香港3个主要的区域性脊髓损伤康复中心之一。共邀请了120名潜在参与者加入研究。最终研究组包括58名患者(25名(43%)男性和33名(57%)女性,其中30名(50%)年龄在40岁以下)。

方法

使用世界卫生组织生活质量简表香港中文版(WHO-QOL-BREF(HK))评估健康相关生活质量。汇总结果并与香港健康人群和其他疾病人群之前的结果进行比较。

结果

男性和女性之间、脊髓损伤不同病程、不同教育水平或不同婚姻状况之间的生活质量无显著差异(p>0.05)。然而,不同年龄组以及不完全性截瘫和完全性截瘫患者之间的生活质量存在显著差异(p<0.05)。与健康人群和其他疾病人群相比,截瘫患者在香港的生活质量最低(p<0.001)。

结论

香港的截瘫患者生活质量低于香港普通人群。尤其在交通、医疗和社会生活等方面,需要更多社区支持以满足这些患者的需求。

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