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继发性疾病与身体残疾女性:一项描述性研究。

Secondary conditions and women with physical disabilities: a descriptive study.

作者信息

Coyle C P, Santiago M C, Shank J W, Ma G X, Boyd R

机构信息

Department of Health Studies, Temple University, Philadelphia, PA 19122, USA.

出版信息

Arch Phys Med Rehabil. 2000 Oct;81(10):1380-7. doi: 10.1053/apmr.2000.9169.

DOI:10.1053/apmr.2000.9169
PMID:11030504
Abstract

OBJECTIVE

To examine secondary conditions and their relationship to life satisfaction in women with physical disabilities.

DESIGN

Survey research.

SETTING

Metropolitan Philadelphia.

PARTICIPANTS

Women aged 18 to 65 years with self-reported functional limitations associated with neurologic, neuromuscular, brain, sensory, arthritic, spinal cord, orthopedic, or other chronic conditions.

MAIN OUTCOME MEASURES

Secondary conditions, health status, functional status, and life satisfaction.

RESULTS

In the past year, an average of 12 +/- 6.1 (SD) secondary conditions were experienced. Fatigue, mobility, physical deconditioning, spasticity, and joint pain were reported most frequently, followed by depression, chronic pain, access problems, weight problems, and isolation. In comparing women with multiple sclerosis (MS) and those with other disabling conditions, women with MS had higher secondary conditions problem index (SCPI) scores for bladder, bowel, and sexual dysfunction than women in the mixed disability group. Other secondary conditions with the highest SCPI scores remained similar. Self-reported emotional health status and SCPI scores were the only significant predictors of life satisfaction.

CONCLUSION

Secondary conditions influence health status and quality of life for women with physical disabilities. Despite differences among disability groups in terms of the type of secondary conditions, common secondary conditions experienced by most women may be amenable to non-disability-specific health promotion programs.

摘要

目的

研究身体残疾女性的继发疾病及其与生活满意度的关系。

设计

调查研究。

地点

费城大都市地区。

参与者

年龄在18至65岁之间,自我报告存在与神经、神经肌肉、脑、感官、关节炎、脊髓、骨科或其他慢性疾病相关功能限制的女性。

主要观察指标

继发疾病、健康状况、功能状态和生活满意度。

结果

在过去一年中,平均经历了12±6.1(标准差)种继发疾病。疲劳、行动能力、身体机能下降、痉挛和关节疼痛的报告最为频繁,其次是抑郁、慢性疼痛、就医问题、体重问题和孤立感。在比较患有多发性硬化症(MS)的女性和患有其他致残疾病的女性时,患有MS的女性在膀胱、肠道和性功能障碍方面的继发疾病问题指数(SCPI)得分高于混合残疾组的女性。SCPI得分最高的其他继发疾病情况仍然相似。自我报告的情绪健康状况和SCPI得分是生活满意度的唯一显著预测因素。

结论

继发疾病会影响身体残疾女性的健康状况和生活质量。尽管不同残疾群体在继发疾病类型方面存在差异,但大多数女性经历的常见继发疾病可能适用于非特定残疾的健康促进项目。

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