Pecchioni L L, Nussbaum J F
Department of Speech Communication, Louisiana State University, Baton Rouge 70803-3923, USA.
Health Commun. 2000;12(4):317-38. doi: 10.1207/S15327027HC1204_1.
Parents and their adult children rarely have discussions regarding caregiving preferences, especially before the onset of dependency. Families develop decision-making practices during caregiving, ideally, ones that maintain the care recipient's autonomy. Maintaining autonomy is essential because limiting autonomy leads to potentially negative health consequences. This study examined the attitudes of older, independent mothers and their adult daughters (n = 36 dyads) as well as their communication behaviors during decision making. All the mothers and daughters (100%) held strong beliefs in shared autonomy. Mothers (55.6%) and daughters (58.3%) were about evenly split in their strength of belief in independent autonomy. More mothers (63.9%) held strong beliefs in paternalism than did daughters (36.1%). In their conversations, daughters talked more when the mother and daughter held stronger beliefs in paternalism. These findings suggest that an individual's attitudes toward paternalism influence who controls conversations between parents and their adult children regarding caregiving, even before the parent has begun to show any signs of dependency. Once caregiving begins, it can be too late to change already ingrained patterns of decision making. Although this study takes a step toward establishing an understanding of how families develop decision-making processes utilized during caregiving, the sample size and composition limit generalizability. Future studies should follow families, as the parents make the transition from independence to dependence, to develop a better understanding of the factors involved in successfully making such a critical transition in the family's life.
父母及其成年子女很少就照护偏好进行讨论,尤其是在出现依赖之前。家庭在照护过程中形成决策方式,理想情况下,这些方式应能维护受照护者的自主性。维护自主性至关重要,因为限制自主性会导致潜在的负面健康后果。本研究调查了年长的、独立的母亲及其成年女儿(36对母女)的态度以及她们在决策过程中的沟通行为。所有母亲和女儿(100%)都强烈认同共同自主性。在对独立自主性的信念强度方面,母亲(55.6%)和女儿(58.3%)大致相当。在家长式作风方面,持有强烈信念的母亲(63.9%)比女儿(36.1%)更多。在她们的对话中,当母亲和女儿对家长式作风持有更强信念时,女儿会说得更多。这些发现表明,即使在父母尚未开始表现出任何依赖迹象之前,个体对家长式作风的态度也会影响父母与成年子女之间谁控制关于照护的对话。一旦照护开始,改变已经根深蒂固的决策模式可能就为时已晚。尽管本研究朝着理解家庭如何形成照护期间所采用的决策过程迈出了一步,但样本量和构成限制了其普遍性。未来的研究应该跟踪家庭,观察父母从独立到依赖的转变过程,以便更好地理解在家庭生活中成功实现这一关键转变所涉及的因素。