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扩大临终关怀在肌萎缩侧索硬化症中的作用。

Expanding the role of hospice care in amyotrophic lateral sclerosis.

作者信息

Carter G T, Bednar-Butler L M, Abresch R T, Ugalde V O

机构信息

Rehabilitation Services, Providence HealthCare System, Southwest Washington, USA.

出版信息

Am J Hosp Palliat Care. 1999 Nov-Dec;16(6):707-10. doi: 10.1177/104990919901600607.

Abstract

Amyotrophic lateral sclerosis (ALS) is a rapidly progressive, ultimately fatal, motor neuron disease that poses a myriad of clinical and end-of-life problems. The needs of advanced ALS patients are well suited to the interdisciplinary, multi-modality setting of hospice, where comprehensive palliative strategies may ease suffering and allow the patient to die with dignity in the home. Unfortunately, hospice services are far underutilized in this setting. There is a great need to increase awareness of both patients and clinicians regarding the effectiveness of hospice in the care of advanced ALS patients.

摘要

肌萎缩侧索硬化症(ALS)是一种快速进展、最终致命的运动神经元疾病,会引发众多临床和临终问题。晚期ALS患者的需求非常适合临终关怀的跨学科、多模式环境,在这种环境中,全面的姑息治疗策略可以减轻痛苦,让患者在家中尊严地离世。不幸的是,在这种情况下,临终关怀服务的利用率极低。非常有必要提高患者和临床医生对临终关怀在晚期ALS患者护理中的有效性的认识。

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