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永久性全胃肠外营养:早期阶段的心理和社会反应

Permanent total parenteral nutrition: psychological and social responses of the early stages.

作者信息

Price B S, Levine E L

出版信息

JPEN J Parenter Enteral Nutr. 1979 Mar-Apr;3(2):48-52. doi: 10.1177/014860717900300203.

DOI:10.1177/014860717900300203
PMID:110953
Abstract

Permanent Total Parenteral Nutrition (TPN) is a life-saving but complicated procedure which has profound effects upon the lives of patients and their families, but there is a dearth of information on the the psychosocial consequences of this unique form of therapy. The authors worked with 19 consecutive TPN patients in hospital and after discharge and observed their reactions. It was found that the earliest stages were the most difficult, with anxiety, depression, fear, and negative body image predictable and universal experiences. Major adjustment problems centered around the loss of the basic function, eating. This artificial form of feeding forced multiple alterations in the patients' life styles. Their ability to cope with this intrusive procedure was related to the level of restitution of physical health, ego strength, and the family and hospital support systems. If, in addition to being a life-sustaining procedure, TPN is to restore the psychological stability of patients, all team members must be aware of the psychosocial factors involved.

摘要

永久性全胃肠外营养(TPN)是一种挽救生命但复杂的治疗方法,对患者及其家人的生活有着深远影响,但关于这种独特治疗方式的社会心理后果的信息却十分匮乏。作者对19例连续住院及出院后的TPN患者进行了研究,并观察他们的反应。结果发现,最初阶段最为困难,焦虑、抑郁、恐惧和负面身体形象是可预见的普遍经历。主要的适应问题集中在基本功能——进食的丧失上。这种人工喂养方式迫使患者的生活方式发生了多重改变。他们应对这种侵扰性治疗的能力与身体健康的恢复程度、自我力量以及家庭和医院支持系统有关。如果TPN除了作为一种维持生命的治疗方法之外,还要恢复患者的心理稳定性,那么所有团队成员都必须了解其中涉及的社会心理因素。

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Permanent total parenteral nutrition: psychological and social responses of the early stages.永久性全胃肠外营养:早期阶段的心理和社会反应
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Quality of life in patients receiving home parenteral nutrition.
接受家庭肠外营养患者的生活质量。
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Quality of life of patients receiving home parenteral or enteral nutrition support.
Pharmacoeconomics. 1994 Feb;5(2):101-8. doi: 10.2165/00019053-199405020-00004.
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Quality of life of patients on long-term total parenteral nutrition at home.长期家庭肠外营养患者的生活质量
J Gen Intern Med. 1986 Jan-Feb;1(1):26-33. doi: 10.1007/BF02596321.
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Eur J Pediatr. 1986 Feb;144(5):505-7. doi: 10.1007/BF00441749.