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家庭肠内营养:患者及家属参与的“成本”

Home parenteral nutrition: the "costs" of patient and family participation.

作者信息

Johnston J E

出版信息

Soc Work Health Care. 1981 Winter;7(2):49-66. doi: 10.1300/j010v07n02_04.

DOI:10.1300/j010v07n02_04
PMID:6806922
Abstract

The continued advancements in technology and medicine now make it possible for patients who are nutritional "cripples" to thrive on an outpatient basis through home parenteral nutrition (HPN). Since the social and psychological literature does not yet reflect extensive information on this type of program, this article outlines in detail a successful HPN program and explores the personal factors and needed resources involved in participation in such a program, including the perils of third party reimbursement. Based on experience in evaluating 36 HPN candidates and working with 26 HPN participants, the salient problems and concerns patients and families encounter with HPN therapy are discussed along with suggestions for constructively addressing such issues.

摘要

如今,技术和医学的不断进步使那些营养状况不佳的患者通过家庭肠外营养(HPN)在门诊条件下也能茁壮成长。由于社会和心理学文献尚未反映出关于此类项目的广泛信息,本文详细概述了一个成功的HPN项目,并探讨了参与该项目所涉及的个人因素和所需资源,包括第三方报销的风险。基于对36名HPN候选人的评估经验以及与26名HPN参与者的合作经验,讨论了患者和家庭在HPN治疗中遇到的突出问题和担忧,并提出了建设性解决这些问题的建议。

相似文献

1
Home parenteral nutrition: the "costs" of patient and family participation.家庭肠内营养:患者及家属参与的“成本”
Soc Work Health Care. 1981 Winter;7(2):49-66. doi: 10.1300/j010v07n02_04.
2
Home total parenteral nutrition: a psycho-social viewpoint.家庭全胃肠外营养:一种社会心理视角
JPEN J Parenter Enteral Nutr. 1981 Nov-Dec;5(6):522-5. doi: 10.1177/0148607181005006522.
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Home parenteral nutrition for the short bowel syndrome. Psychological issues.短肠综合征的家庭肠外营养。心理问题。
Gen Hosp Psychiatry. 1980 Dec;2(4):271-81. doi: 10.1016/0163-8343(80)90080-8.
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Subjective assessment of patient outcomes of home parenteral nutrition.
Am J Hosp Pharm. 1983 Oct;40(10):1646-50.
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Periodic reassessment for improved, cost-effective care in home total parenteral nutrition: a case report.家庭全胃肠外营养中为改善护理及提高成本效益进行定期重新评估:病例报告
JPEN J Parenter Enteral Nutr. 1984 Nov-Dec;8(6):708-10. doi: 10.1177/0148607184008006708.
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Teaching home parenteral nutrition to patients with limited compliance skills.向依从性技能有限的患者传授家庭肠外营养知识。
JPEN J Parenter Enteral Nutr. 1982 Mar-Apr;6(2):160-2. doi: 10.1177/0148607182006002160.
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Permanent total parenteral nutrition: psychological and social responses of the early stages.永久性全胃肠外营养:早期阶段的心理和社会反应
JPEN J Parenter Enteral Nutr. 1979 Mar-Apr;3(2):48-52. doi: 10.1177/014860717900300203.
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Home parenteral nutrition with full-time home care nurses.
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Life without eating or drinking: total parenteral nutrition outside hospital.
Can Psychiatr Assoc J. 1978 Oct;23(6):373-9. doi: 10.1177/070674377802300604.

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The role of the social worker in the assessment and management of adults receiving Home Parenteral Nutrition.社会工作者在接受家庭肠外营养的成年人评估与管理中的作用。
Eur J Clin Nutr. 2025 Jun;79(6):499-503. doi: 10.1038/s41430-024-01555-0. Epub 2025 Feb 3.