Ferraz Gonçalves J, Castro S
Unidade de Cuidados Continuados, Instituto Português de Oncologia, Porto, Portugal.
Palliat Med. 2001 Jan;15(1):35-41. doi: 10.1191/026921601676515878.
The disclosure of a diagnosis of cancer to patients is a controversial matter. There have been major differences in practice concerning this issue through time and between cultures. A questionnaire was sent to the doctors of the Oporto Centre of the Portuguese Institute of Oncology in order to assess their attitudes. We received 45 responses (40%) from the 113 questionnaires sent. Of these, 32 (71%) said that they disclose the diagnosis as a general policy or at the patients' request, and 13 (29%) disclose it rarely or not at all. The most frequent reason indicated by these 13 physicians was that the disclosure might damage the patients psychologically. Forty-four (98%) doctors inform the family of the diagnosis. Thirty-nine (87%) think that patients are satisfied with the information provided. This study was carried out in one oncological centre only, so it is inappropriate to conclude that this is what happens throughout Portugal. As far as we know, this is the first study in Portugal addressing this area of practice. This subject is a very important topic of research both in Portugal and in other countries, as many published recommendations are not research based.
向患者透露癌症诊断是一个有争议的问题。随着时间的推移以及不同文化之间，在这个问题的实际操作上存在重大差异。为了评估葡萄牙肿瘤研究所波尔图中心医生的态度，我们向他们发放了一份问卷。在发放的113份问卷中，我们收到了45份回复（40%）。其中，32人（71%）表示他们通常会透露诊断结果或应患者要求透露，13人（29%）很少透露或根本不透露。这13位医生指出的最常见原因是透露诊断结果可能会在心理上伤害患者。44位（98%）医生会告知患者家属诊断结果。39位（87%）医生认为患者对所提供的信息感到满意。这项研究仅在一个肿瘤中心进行，因此不能得出这就是整个葡萄牙的情况的结论。据我们所知，这是葡萄牙第一项针对这一实践领域的研究。这个主题在葡萄牙和其他国家都是非常重要的研究课题，因为许多已发表的建议并非基于研究。
