Brouwer C N, Lok C L, Wolffers I, Sebagalls S
Department of Health Care and Culture, Faculty of Medicine, Vrije Universiteit, Van der Boechorststraat 7, 1081 BT Amsterdam, The Netherlands.
AIDS Care. 2000 Oct;12(5):535-40. doi: 10.1080/095401200750003725.
The knowledge that her child is infected puts a heavy emotional burden on a mother. Despair or depression lead to difficulties in reacting to the options and advice given by health workers. The compliance of the mother also is largely dependent on her acceptance of the HIV status of the child. Additionally, the belief that the child might die any moment may cause her not to take proper care of the child anymore. Worries of the caretakers are frequently related to poverty. Counselling of caretakers at the health centre could and should be an important element in care for HIV-infected children. Psychological and material support and advice concerning HIV infection, proper childcare and material problems may empower the caretakers. This may lead to a better follow-up of the child by health care workers and to increased compliance of and better care by the caretaker, which will improve life and survival of an infected child.
知道自己的孩子感染了艾滋病,会给母亲带来沉重的情感负担。绝望或抑郁会导致母亲难以对医护人员提供的选择和建议做出反应。母亲的依从性在很大程度上也取决于她对孩子感染艾滋病状况的接受程度。此外,认为孩子随时可能死亡的想法可能导致她不再妥善照顾孩子。照顾者的担忧往往与贫困有关。在健康中心对照顾者进行咨询能够而且应该成为护理感染艾滋病儿童的一个重要环节。提供心理和物质支持以及有关艾滋病感染、适当儿童护理和物质问题的建议,可能会增强照顾者的能力。这可能会使医护人员对孩子进行更好的跟踪随访,并提高照顾者的依从性和改善其照顾质量,从而改善感染儿童的生活和生存状况。