Weber P, Niesse G, Ganser G, Zimmer K P
Universitäts-Kinderspital beider Basel, Basel.
Klin Padiatr. 2001 Jan-Feb;213(1):17-20. doi: 10.1055/s-2001-11267.
Pain and aches are part of subjective experience. Caring for chronically ill children and adolescents not only objective results but also the children s subjective perception of their illness should be taken into consideration. We have tried to record the extent of subjective suffering of a group of pediatric rheumatic patients and to correlate our findings with personality traits.
We interviewed thirty-one 8 to 18 years old children and adolescents (average age 12 years) by means of a standardized questionnaire (Giessener Beschwerdefragebogen) and of a standardized personality questionnaire (HANES,KJ). The tested group comprised of 9 boys and 22 girls. 14 patients suffered from a chronic oligoarthritis, 9 from a chronic polyarthritis, 8 from a other rheumatic disease. Percentiles of more than 89 percent have been considered significant compared to norm collectives.
28% of the patients showed augmented values on the scales "exhaustion" and "intestinal pain", 25% on the scale "pain in joints". Only 3 respectively 2 patients showed augmented values on the scales "heart" and "symptoms of cold". 28% showed augmented values on the overall scale "feeling of discomfort". 35% showed augmented values on neuroticism, 61% values > 89. percentile on the scale "extraversion". There is a significant connection between augmented strong feelings of discomfort and augmented values of neuroticism on the level 0.1%. A context to the duration of the illness was not found.
Experience of physical pains is not only limited to isolated symptoms of the basic illness but also associated with general features of personality.
疼痛和酸痛是主观体验的一部分。照顾慢性病患儿和青少年不仅要考虑客观结果，还应考虑他们对疾病的主观感受。我们试图记录一组小儿风湿性疾病患者的主观痛苦程度，并将我们的发现与人格特质相关联。
我们通过标准化问卷（吉森症状问卷）和标准化人格问卷（哈内斯，KJ）对31名8至18岁的儿童和青少年（平均年龄12岁）进行了访谈。测试组包括9名男孩和22名女孩。14名患者患有慢性寡关节炎，9名患有慢性多关节炎，8名患有其他风湿性疾病。与正常人群相比，超过89%的百分位数被认为具有显著意义。
28%的患者在“疲惫”和“肠痛”量表上显示值升高，25%在“关节疼痛”量表上显示值升高。只有3名和2名患者在“心脏”和“感冒症状”量表上显示值升高。28%的患者在“不适感”总体量表上显示值升高。35%的患者在神经质量表上显示值升高，61%的患者在“外向性”量表上的值>89百分位数。在0.1%的水平上，强烈的不适感增加与神经质值增加之间存在显著关联。未发现与疾病持续时间的关联。
身体疼痛的体验不仅限于基础疾病的孤立症状，还与人格的一般特征相关。
