O'Brien M E
Marquette University College of Nursing, 223 Clark Hall, PO Box 1881, Milwaukee, WI 53201-1881, USA. maureen.o'
J Pediatr Nurs. 2001 Feb;16(1):13-22. doi: 10.1053/jpdn.2001.20548.
Families' experiences of providing long-term home care for the child who is technology dependent were explored via parental interviews. Families identified frequent change, uncertainty, and unpredictability in their lives, a phenomenon described as "living in a house of cards." Attempts to increase stability involved the use of vigilance, advocacy, and reframing. Areas of challenge, change, and growth included making sense of life, managing daily life with technology, and maintaining a functioning family. Increased understanding of family experiences with long-term childhood technology dependence can provide nurses with additional strategies for providing optimal care to this population.
通过对家长的访谈，探讨了家庭为依赖技术的儿童提供长期家庭护理的经历。家庭发现他们的生活中频繁出现变化、不确定性和不可预测性，这种现象被描述为“生活在纸牌屋中”。为增加稳定性所做的努力包括保持警惕、进行维权和重新构建认知。面临挑战、发生变化和实现成长的领域包括理解生活、借助技术管理日常生活以及维持家庭正常运转。加深对家庭长期照顾依赖技术儿童经历的了解，可以为护士提供更多策略，以便为这一群体提供最佳护理。
