团结与公平：遗传数据库的新伦理框架

Solidarity and equity: new ethical frameworks for genetic databases.

作者信息

Chadwick R, Berg K

机构信息

Institute for Environmental Philosophy and Public Policy, Lancaster University, Bailrigg, Lancaster, Lancashire LA1 4SH, UK.

出版信息

Nat Rev Genet. 2001 Apr;2(4):318-21. doi: 10.1038/35066094.

DOI:10.1038/35066094

PMID:11283704

Abstract

Genetic database initiatives have given rise to considerable debate about their potential harms and benefits. The question arises as to whether existing ethical frameworks are sufficient to mediate between the competing interests at stake. One approach is to strengthen mechanisms for obtaining informed consent and for protecting confidentiality. However, there is increasing interest in other ethical frameworks, involving solidarity--participation in research for the common good--and the sharing of the benefits of research.

摘要

基因数据库计划引发了关于其潜在危害和益处的大量争论。问题在于现有的伦理框架是否足以在相互冲突的利益之间进行协调。一种方法是加强获取知情同意和保护隐私的机制。然而，人们对其他伦理框架的兴趣与日俱增，这些框架涉及团结——为了共同利益参与研究——以及研究成果的共享。