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脑肿瘤患者及其配偶的精神思想、应对方式和“连贯感”

Spiritual thoughts, coping and 'sense of coherence' in brain tumour patients and their spouses.

作者信息

Strang S, Strang P

机构信息

Department of Oncology, Sahlgrenska University Hospital, 413 45 Gothenburg, Sweden.

出版信息

Palliat Med. 2001 Mar;15(2):127-34. doi: 10.1191/026921601670322085.

Abstract

When a person is diagnosed with a life-threatening disease, existential questions are easily triggered. The aims of this study were to explore to what extent brain tumour patients and their next of kin were able to cope, understand and create meaning in their situation, to explore whether spirituality could be supportive and to analyse whether these concepts are related to Antonovsky's concept of sense of coherence. Using a purposive sampling technique, 20 patients and 16 of their next of kin took part in tape-recorded interviews. A content and context analysis was performed using a hermeneutic approach. We found that comprehensibility was to a large extent constructed by the patient's own thoughts and theories, despite an insecure situation. Manageability was achieved by active information-seeking strategies, by social support and by coping, including positive reinterpretation of the situation. Meaningfulness was central for quality of life and was created by close relations and faith, as well as by work. A crucial factor was whether the person had a 'fighting spirit' that motivated him or her to go on. As only three patients were believers, trust in God had generally been replaced by a belief and confidence in oneself, in science, in positive thinking and by closeness to nature. Sense of coherence as a concept can explain how exposed persons handle their situation. In its construction, sence of coherence integrates essential parts of the stress/coping model (comprehensibility, manageability) and of spirituality (meaning).

摘要

当一个人被诊断出患有危及生命的疾病时,很容易引发关于生存意义的问题。本研究的目的是探讨脑肿瘤患者及其近亲在多大程度上能够应对、理解并在其处境中创造意义,探讨灵性是否具有支持作用,并分析这些概念是否与安托诺夫斯基的连贯感概念相关。采用目的抽样技术,20名患者及其16名近亲参与了录音访谈。使用诠释学方法进行了内容和语境分析。我们发现,尽管处境不稳定,但可理解性在很大程度上是由患者自己的思想和理论构建的。可管理性是通过积极的信息寻求策略、社会支持和应对(包括对处境的积极重新诠释)来实现的。意义感对生活质量至关重要,它是由亲密关系、信仰以及工作创造的。一个关键因素是这个人是否有“斗志”来激励自己继续前行。由于只有三名患者是信徒们,对上帝的信任通常已被对自己、对科学、对积极思维以及与自然亲近的信念和信心所取代。连贯感作为一个概念可以解释受影响的人如何应对自己的处境。在其构建过程中,连贯感整合了压力/应对模型(可理解性、可管理性)和灵性(意义)的重要部分。

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