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基因乐观主义:新闻中对基因与精神疾病的表述

Genetic optimism: framing genes and mental illness in the news.

作者信息

Conrad P

机构信息

Department of Sociology, Brandeis University, Waltham, MA 02454-9110, USA.

出版信息

Cult Med Psychiatry. 2001 Jun;25(2):225-47. doi: 10.1023/a:1010690427114.

Abstract

Over the past two decades the pace and specificity of discoveries associating genetics with mental illness has accelerated, which is reflected in an increase in news coverage about the genetics of mental disorder. The news media is a major source of public understanding of genetics and a strong influence on public discourse. This paper examines the news coverage of genetics and mental illness (i.e., bipolar illness and schizophrenia) over a 25 year period, emphasizing the peak period of 1987-1994. Using a sample of 110 news stories from 5 major American newspapers and 3 news magazines, we identify the frame of "genetic optimism" which dominated the reporting of genetics and mental illness beginning in the mid- 1980s. The structure of the frame is comprised of 3 elements: a gene for the disorder exists; it will be found; and it will be good. New discoveries of genes were announced with great fanfare, but the most promising claims could not be replicated or were retracted in short order. Despite these disconfirmations, genetic optimism persisted in subsequent news stories. While the scientific accuracy of the gene stories is high, the genetic optimism frame distorts some of the findings, misrepresents and reifies the impact of genes on mental disorder, and leaves no space for critics or an examination of potential negative impacts. The stances of reporters, scientists and editors may all in different ways contribute to the perpetuation of genetic optimism. Genetic optimism presents an overly sanguine picture of the state of genetics; as we enter the genetic age it is important to balance the extraneous "hype and hope" contained in news stories of genetics and mental illness.

摘要

在过去二十年中,将遗传学与精神疾病联系起来的发现的速度和特异性都加快了,这反映在关于精神障碍遗传学的新闻报道有所增加。新闻媒体是公众了解遗传学的主要来源,并且对公众话语有很大影响。本文考察了25年间关于遗传学与精神疾病(即双相情感障碍和精神分裂症)的新闻报道,重点关注1987年至1994年的高峰期。通过从美国5家主要报纸和3家新闻杂志中选取110篇新闻报道作为样本,我们识别出了“基因乐观主义”框架,该框架自20世纪80年代中期开始主导遗传学与精神疾病的报道。这个框架的结构由三个要素组成:存在导致该疾病的基因;它将会被找到;而且它将会带来益处。新的基因发现被大肆宣扬,但最有前景的说法无法被重复验证,或者很快就被撤回。尽管有这些否定性的结果,基因乐观主义在随后的新闻报道中依然存在。虽然关于基因的报道在科学准确性方面较高,但基因乐观主义框架歪曲了一些研究结果,错误呈现并固化了基因对精神障碍的影响,不给批评者留空间,也不审视潜在的负面影响。记者、科学家和编辑的立场可能都以不同方式促成了基因乐观主义的持续存在。基因乐观主义描绘了一幅关于遗传学状况的过于乐观的图景;随着我们进入基因时代,平衡遗传学与精神疾病新闻报道中那些无关的“炒作与希望”很重要。

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