Addington-Hall J, McPherson C
Department of Palliative Care and Policy, Guy's, Kings' and St. Thomas' School of Medicine, King's College, London, United Kingdom.
J Pain Symptom Manage. 2001 Sep;22(3):784-90. doi: 10.1016/s0885-3924(01)00330-x.
After-death interviews with bereaved respondents are an important tool in the repertoire of researchers evaluating the quality of end-of-life care or investigating the experiences of people at the end of life. Despite the importance of after-death interviews to our understanding of the last months of life, the validity of the information gathered has received little attention. In this article, we review some of the available information, drawing on evidence from cognitive psychology as well as from palliative care studies. Findings from cognitive psychology indicate that memory is a dynamic process, influenced by emotion state and the individual's perspective at the time of the event and at recall. Further research is therefore needed to understand better the circumstances, types of information and research questions for which bereaved relatives are valid surrogates for people who have died.
对失去亲人的受访者进行死亡后访谈,是研究人员评估临终关怀质量或调查临终者经历时常用的一项重要工具。尽管死亡后访谈对于我们理解生命的最后几个月非常重要,但所收集信息的有效性却很少受到关注。在本文中,我们借鉴认知心理学以及姑息治疗研究的证据,回顾一些现有信息。认知心理学的研究结果表明,记忆是一个动态过程,受到事件发生时以及回忆时的情绪状态和个人视角的影响。因此,需要进一步开展研究,以更好地了解在哪些情况下、哪些类型的信息以及哪些研究问题上,失去亲人的亲属能够成为逝者的有效替代者。