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Ethical issues in genetic counseling: a comparison of M.S. counselor and medical geneticist perspectives.

作者信息

Pencarinha Deborah F, Bell Nora K, Edwards Janice G, Best Robert G

出版信息

J Genet Couns. 1992 Mar;1(1):19-30. doi: 10.1007/BF00960081.

DOI:10.1007/BF00960081
PMID:11651279
Abstract
摘要

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The Directiveness that Dare Not Speak Its Name. Views and Attitudes of Polish Clinical Geneticists toward the Nondirectiveness Principle.《不敢言说的导向性：波兰临床遗传学家对不偏倚原则的看法和态度》
J Bioeth Inq. 2022 Dec;19(4):557-569. doi: 10.1007/s11673-022-10202-x. Epub 2022 Sep 1.
2
The ethics and logistics of field-based genetic paternity studies.基于实地的基因亲子鉴定研究的伦理与后勤保障
Evol Hum Sci. 2020;2. doi: 10.1017/ehs.2020.23. Epub 2020 May 13.
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Disclosure to genetic relatives without consent - Australian genetic professionals' awareness of the health privacy law.

本文引用的文献

1
Reproductive pasts, reproductive futures. Genetic counseling and its effectiveness.
Birth Defects Orig Artic Ser. 1981;17(4):1-192.
2
Ethical aspects of medical genetics. A proposal for guidelines in genetic counseling, prenatal diagnosis and screening.医学遗传学的伦理问题。遗传咨询、产前诊断和筛查指南建议。
Clin Genet. 1985 Feb;27(2):199-205.
3
Ethics and medical genetics in the United States: a national survey.美国的伦理与医学遗传学：一项全国性调查。
Am J Med Genet. 1988 Apr;29(4):815-27. doi: 10.1002/ajmg.1320290411.
未经同意向遗传亲属披露信息-澳大利亚遗传专业人员对健康隐私法的认识。
BMC Med Ethics. 2020 Feb 4;21(1):13. doi: 10.1186/s12910-020-0451-1.
4
Prenatal Diagnosis of Cystic Fibrosis and Hemophilia: Incidental Findings and Weak Points.囊性纤维化和血友病的产前诊断：偶发发现与薄弱环节
Diagnostics (Basel). 2019 Dec 21;10(1):7. doi: 10.3390/diagnostics10010007.
5
Genetic counselors' scope of practice and challenges in genetic counseling services in Saudi Arabia.沙特阿拉伯遗传咨询服务中遗传咨询师的执业范围及挑战
Int J Pediatr Adolesc Med. 2016 Mar;3(1):1-6. doi: 10.1016/j.ijpam.2015.12.002. Epub 2016 Jan 28.
6
How should we deal with misattributed paternity? A survey of lay public attitudes.我们应该如何处理错误认定的亲子关系？一项关于公众态度的调查。
AJOB Empir Bioeth. 2017 Oct-Dec;8(4):234-242. doi: 10.1080/23294515.2017.1378751. Epub 2017 Sep 29.
7
An old problem in a new age: Revisiting the clinical dilemma of misattributed paternity.新时代的老问题：重新审视父子关系误认的临床困境。
Appl Transl Genom. 2016 Feb 1;8:36-9. doi: 10.1016/j.atg.2016.01.004. eCollection 2016 Mar.
8
Availability of treatment drives decisions of genetic health professionals about disclosure of incidental findings.治疗的可及性影响着遗传健康专业人员关于披露偶发发现的决策。
Eur J Hum Genet. 2014 Oct;22(10):1225-8. doi: 10.1038/ejhg.2014.11. Epub 2014 Feb 5.
9
Sociocultural and ethical dilemmas of genetic counseling-A suggested working approach.遗传咨询中的社会文化与伦理困境——一种建议的工作方法
J Genet Couns. 1994 Mar;3(1):81-3. doi: 10.1007/BF01414610.
10
Prenatal healthcare providers' Gaucher disease carrier screening practices.产前保健提供者的戈谢病携带者筛查实践。
Genet Med. 2012 Oct;14(10):844-51. doi: 10.1038/gim.2012.63. Epub 2012 May 31.
4
Attitudes of genetic counselors: a multinational survey.遗传咨询师的态度：一项跨国调查。
Am J Hum Genet. 1988 Apr;42(4):592-600.
5
Moral reasoning among medical geneticists in eighteen nations.18个国家医学遗传学家的道德推理
Theor Med. 1989 Jun;10(2):123-38. doi: 10.1007/BF00539878.
6
The role of beneficence in clinical genetics: non-directive counseling reconsidered.临床遗传学中善行的作用：对非指导性咨询的重新思考。
Theor Med. 1989 Jun;10(2):139-49. doi: 10.1007/BF00539879.
7
The place of autonomy in bioethics.自主权在生物伦理学中的地位。
Hastings Cent Rep. 1990 Jan-Feb;20(1):12-7.