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临床遗传学中善行的作用:对非指导性咨询的重新思考。

The role of beneficence in clinical genetics: non-directive counseling reconsidered.

作者信息

Yarborough M, Scott J A, Dixon L K

出版信息

Theor Med. 1989 Jun;10(2):139-49. doi: 10.1007/BF00539879.

DOI:10.1007/BF00539879
PMID:2528837
Abstract

The popular view of non-directive genetic counseling limits the counselor's role to providing information to clients and assisting families in making decisions in a morally neutral fashion. This view of non-directive genetic counseling is shown to be incomplete. A fuller understanding of what it means to respect autonomy shows that merely respecting client choices does not exhaust the duty. Moreover, the genetic counselor/client relationship should also be governed by the counselor's commitment to the principle of beneficence. When non-directive counseling is reexamined in light of both these principles, it becomes clear that there are cases in which counselors should attempt to persuade clients to reconsider their decisions. Such attempts are consistent with non-directive counseling because, while respecting the clients' decision-making authority, they insure that clients act with full knowledge of the moral consequences of their decisions.

摘要

非指导性遗传咨询的普遍观点将咨询者的角色局限于向客户提供信息,并协助家庭以道德中立的方式做出决策。事实证明,这种非指导性遗传咨询的观点是不完整的。对尊重自主性的更全面理解表明,仅仅尊重客户的选择并不能完全履行这一职责。此外,遗传咨询者与客户的关系还应受咨询者对行善原则的承诺的约束。当根据这两个原则重新审视非指导性咨询时,很明显,在某些情况下,咨询者应该试图说服客户重新考虑他们的决定。这种尝试与非指导性咨询是一致的,因为在尊重客户决策权威的同时,它们确保客户在充分了解其决定的道德后果的情况下行事。

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The Experience of Leader-Led Peer Supervision: Genetic Counselors' Perspectives.领导者主导的同伴督导经验:遗传咨询师的观点
J Genet Couns. 2000 Oct;9(5):399-410. doi: 10.1023/A:1009402231506.
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Genetic Counseling-Stress, Coping, and the Empowerment Perspective.

本文引用的文献

1
In the shadow of Huntington's.在亨廷顿氏病的阴影下。
Science (1979). 1984 May;5(4):32-9.
2
The 'right' not to know.不知情的“权利”。
J Med Philos. 1984 Aug;9(3):301-12. doi: 10.1093/jmp/9.3.301.
3
A polymorphic DNA marker genetically linked to Huntington's disease.一种与亨廷顿舞蹈症基因连锁的多态性DNA标记。
遗传咨询——压力、应对与赋权视角
J Genet Couns. 1999 Dec;8(6):345-57. doi: 10.1023/A:1022919325772.
4
Newborn screening and cascade testing for FMR1 mutations.新生儿筛查和 FMR1 突变的级联测试。
Am J Med Genet A. 2013 Jan;161A(1):59-69. doi: 10.1002/ajmg.a.35680. Epub 2012 Dec 13.
5
A national survey of genetic counselors' personal values.一项关于遗传咨询师个人价值观的全国性调查。
J Genet Couns. 2007 Dec;16(6):763-73. doi: 10.1007/s10897-007-9108-1. Epub 2007 Sep 15.
6
A practical account of autonomy: why genetic counseling is especially well suited to the facilitation of informed autonomous decision making.
J Genet Couns. 2005 Apr;14(2):89-97. doi: 10.1007/s10897-005-4067-x.
7
Nondirectiveness and genetic counseling.非指导性与遗传咨询。
J Genet Couns. 1995 Mar;4(1):3-25. doi: 10.1007/BF01423845.
8
Genetic counseling for a family with two distinct anomalies: a case report of a neural tube defect and 5p- syndrome in a fetus.
J Genet Couns. 1994 Jun;3(2):87-93. doi: 10.1007/BF01423171.
9
"Respect for autonomy" in genetic counseling: an analysis and a proposal.遗传咨询中的“尊重自主性”:一项分析与提议
J Genet Couns. 1997 Sep;6(3):297-313. doi: 10.1023/a:1025628322278.
10
Ethical issues in genetic counseling: a comparison of M.S. counselor and medical geneticist perspectives.遗传咨询中的伦理问题:医学遗传咨询师与医学遗传学家观点比较
J Genet Couns. 1992 Mar;1(1):19-30. doi: 10.1007/BF00960081.
Nature. 1983;306(5940):234-8. doi: 10.1038/306234a0.
4
Respect for autonomy and medical paternalism reconsidered.对自主性的尊重与医学家长主义之再思考。
Theor Med. 1985 Oct;6(3):295-308. doi: 10.1007/BF00489731.
5
Excuse me, but you have a melanoma on your neck! Unsolicited medical opinions.不好意思,你脖子上有个黑素瘤!主动提供的医疗意见。
J Med Philos. 1985 May;10(2):163-70. doi: 10.1093/jmp/10.2.163.
6
Unsolicited medical opinion.主动提供的医学意见。
J Med Philos. 1985 May;10(2):147-62. doi: 10.1093/jmp/10.2.147.
7
Ethical aspects of medical genetics. A proposal for guidelines in genetic counseling, prenatal diagnosis and screening.医学遗传学的伦理问题。遗传咨询、产前诊断和筛查指南建议。
Clin Genet. 1985 Feb;27(2):199-205.
8
Mutual persuasion as a model for doctor-patient communication.
Theor Med. 1986 Jun;7(2):127-46. doi: 10.1007/BF00489226.
9
Mill and the right to remain uninformed.密尔与不知情权。
J Med Philos. 1986 Aug;11(3):265-84. doi: 10.1093/jmp/11.3.265.
10
The dilemma of suicide and Huntington disease.自杀与亨廷顿病的困境。
Am J Med Genet. 1987 Feb;26(2):315-20. doi: 10.1002/ajmg.1320260209.