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遗传无知权得到确认。

The right to genetic ignorance confirmed.

作者信息

Takala Tuija

出版信息

Bioethics. 1999 Jul;13(3-4):288-93. doi: 10.1111/1467-8519.00157.

Abstract

One of the much debated issues around the evolving human genetics is the question of the right to know versus the right not to know. The core question of this theme is whether an individual has the right to know about her own genetic constitution and further, does she also have the right to remain in ignorance. Within liberal traditions it is usually held that people, if they so wish, have the right to all the knowledge available about themselves. This right is based on the value of autonomy or on the right of self-determination, and it is sometimes partly justified as a countermeasure to the authorities' control over people. I do not wish to deny the right to genetic knowledge (about oneself). I think that its existence is self-evident. The argument I want to put forth in this paper is that in liberal societies we should acknowledge people's right to remain in ignorance as well. The only reason for not doing this would be that grave harm to others would follow if people were allowed to make these seemingly self-regarding decisions. Arguments presented against the right to ignorance are two-fold. First there are those arguing against the right to ignorance on the grounds of harm to others, that is, philosophers who do not deny people's right to ignorance in self-related matters but wish to state that genetic ignorance causes harm to others, and this is one of the most commonly accepted reasons for restricting people's freedom. The other line of argument flows from the Kantian view that not even merely self-regarding foolishness (in the eyes of others) should be allowed.

摘要

围绕不断发展的人类遗传学展开的诸多备受争议的问题之一,是知情权与不知情权的问题。这一主题的核心问题是,个人是否有权了解自己的基因构成,进而,她是否也有权保持不知情。在自由主义传统中,通常认为,如果人们愿意,他们有权获取关于自己的所有可用知识。这项权利基于自主性的价值或自决权,有时部分被视为是对当局对人们控制的一种对策。我并不想否认(关于自己的)基因知识的权利。我认为它的存在是不言而喻的。我在本文中想要提出的论点是,在自由社会中,我们也应该承认人们保持不知情的权利。不这样做的唯一理由是,如果允许人们做出这些看似关乎自身的决定,会给他人带来严重伤害。反对不知情权的论点有两个方面。首先,有些人以对他人造成伤害为由反对不知情权,也就是说,一些哲学家并不否认人们在与自身相关的事情上有不知情的权利,但他们希望指出,基因方面的不知情会对他人造成伤害,这是限制人们自由最常被接受的理由之一。另一条论证思路源于康德的观点,即甚至连(在他人看来)仅仅关乎自身的愚蠢行为也不应被允许。

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