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基因知识的匮乏、道德义务与社会责任。

Genetic ignorance, moral obligations and social duties.

作者信息

Takala T, Häyry M

机构信息

University of Turku, Finland.

出版信息

J Med Philos. 2000 Feb;25(1):107-13; discussion 114-20. doi: 10.1076/0360-5310(200002)25:1;1-V;FT107.

Abstract

In a contribution to The Journal of Medicine and Philosophy, Professor Rosamond Rhodes argues that individuals sometimes have an obligation to know about their genetic disorders, because this is required by their status as autonomous persons. Her analysis, which is based on Kant's concept of autonomy and Aristotle's notion of friendship, is extended here to consequentialist concerns. These are of paramount importance if, as we believe and Professor Rhodes herself implies, the Kantian and Aristotelian doctrines can be helpful only in the sphere of private morality, not in the public realm. Better tools for assessing the right to genetic ignorance as an issue of public policy can, we contend, be found in Mill's ideas concerning liberty and the prevention of harm. Our own conclusion, based on the Millian way of thinking, is that individuals probably do have the right to remain in ignorance in the cases Professor Rhodes presents as examples of a duty to know.

摘要

在为《医学与哲学杂志》撰写的一篇文章中,罗莎蒙德·罗兹教授认为,个体有时有义务了解自己的基因疾病,因为这是他们作为自主个体的身份所要求的。她的分析基于康德的自主性概念和亚里士多德的友谊观念,在此扩展到后果主义的考量。如果像我们所认为的以及罗兹教授本人所暗示的那样,康德和亚里士多德的学说仅在私人道德领域有用,而在公共领域则不然,那么这些考量就至关重要。我们认为,在密尔关于自由和预防伤害的观点中,可以找到更好的工具来评估作为公共政策问题的基因无知权。基于密尔的思维方式,我们自己的结论是,在罗兹教授作为有了解义务的例子所呈现的案例中,个体可能确实有权保持不知情。

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