Müller-Busch H C
Abt. für Anästhesiologie, Schmerztherapie und Palliativmedizin, GK Havelhöhe, Berlin.
Anasthesiol Intensivmed Notfallmed Schmerzther. 2001 Dec;36(12):726-34. doi: 10.1055/s-2001-18987.
Over the last five decades the progress in intensive care has extended the limitations of controlling the process of dying and given doctors more influence in determining the time of death. More recently, palliative care has emerged as a new approach in response to the ethical dilemmas of modern medicine, which accepts that dying is a natural process that should not be hastened or delayed through medical interventions. While in Germany in 1999 more than 50 000 people have died in intensive care units, only a small number of 8000 patients have died in palliative care. In comparison to the highly-developed intensive care sector, palliative care is a much neglected area. The public debate following the legalisation of euthanasia in the Netherlands has highlighted concerns in Germany that intensive care has the potential of inappropriately prolonging life and raised expectations about the alternative therapies offered by palliative care. Doctors in intensive care and in palliative care face similar ethical dilemmas, though with a different weighting: the dilemma between professional judgement and patient autonomy, between traditional medical roles and patient self-determination and the dilemma of extending the span of life at the expense of quality of life. The approach of palliative care with its strong focus on alleviating the suffering of the terminally ill, has influenced the ethical debate of dying in intensive care. Although intensive care and palliative care have different aims and priorities, there are common problems of decision-making which could benefit from a shared orientation and interdisciplinary debate. Both the interpretation of a dying parent's will as well as withdrawing or withholding treatment in patients who are unable to decide for themselves should not merely be guided by the debate on active and passive euthanasia, but rather take into account the appropriateness or inappropriateness of medical actions in the specific situation.
在过去的五十年里,重症监护领域的进步突破了控制死亡过程的局限,使医生在确定死亡时间方面拥有了更大的影响力。最近,姑息治疗作为应对现代医学伦理困境的一种新方法应运而生,它承认死亡是一个自然过程,不应通过医疗干预来加速或延迟。1999年在德国,有超过5万人在重症监护病房死亡,而在姑息治疗中死亡的患者仅有8000人。与高度发达的重症监护领域相比,姑息治疗是一个被严重忽视的领域。荷兰安乐死合法化引发的公众辩论凸显了德国的担忧,即重症监护可能会不适当地延长生命,并提高了人们对姑息治疗所提供替代疗法的期望。重症监护医生和姑息治疗医生面临着类似的伦理困境,只是权重不同:专业判断与患者自主权之间的困境、传统医疗角色与患者自我决定权之间的困境,以及以牺牲生活质量为代价延长生命跨度的困境。姑息治疗以强烈关注减轻绝症患者痛苦的方式,影响了重症监护中关于死亡的伦理辩论。尽管重症监护和姑息治疗有不同的目标和重点,但存在一些共同的决策问题,这些问题可以从共同的导向和跨学科辩论中受益。对于临终父母意愿的解读,以及在无法自行做决定的患者中停止或 withhold 治疗,不应仅仅由关于主动和被动安乐死的辩论来指导,而应考虑在具体情况下医疗行为的适当性或不适当性。 (注:原文中“withholding”未翻译,因不清楚具体含义,猜测可能是“停止”相关意思,你可根据实际情况调整。)