Jusić Anica
Croatian Society for Hospice/Palliative Care, CMA, Zagreb, Croatia.
Acta Med Croatica. 2008 Dec;62(5):447-54.
The goal of palliative care is to provide the best possible quality of life for patients and their families in the process of dying as well as before, during the course of illness. Emphasis is on the role of team approach in every aspect of patient care. The moral principles of sacredness of life and the right of personal autonomy may occasionally come in conflict. The basic principle of the respect of life prohibits killing, which has been accepted in one way or another by all societies - for the reasons of survival. Similar to this, modern morality supports the principle of respecting autonomy and self-management based on informed, conscious personality of an individual. Still, if the needs of another person appear to be more important or desirable than reaching certain individual goals, then the right of an individual regarding autonomy may be legitimately limited. Decisions on not applying or terminating certain procedures must be based on thorough discussion and consideration of the nature and expected result of treatment. If the patient is not competent, then the discussion should involve a team providing care for the patient and a representative of the patient. When the physician and the team can clearly see that unfavorable effects of treatment will outweigh therapeutic benefits, then, according to medical ethics of the respecting beneficiary, the team is not obliged to provide that form of treatment. Except for palliative care, there is no medical treatment that is always obligatory. A physician that does not accept the patient's request to be killed does not limit the patient's autonomy. Autonomy is self-management and capability of the patient to kill him/herself is not limited by the physician's refusal to do so. Even in those cases when patients for various reasons say that death will be a relief, it does not mean that the physician is obliged to terminate life. The superior obligation of physicians is to alleviate pain. If euthanasia would be legal, it would discourage those that work in the field of medical education and search for new ways to diminish pain. The progress in the development of palliative care would be stopped worldwide. Supporting the belief that killing is forbidden could increase the benefits for the society, whereas forbidding the concept of "allowing to die" despite the use of all-powerful technologies does not seem to maximize beneficial effects. In fact, if the latter be valid, then all patients at intensive care units with all the possible life sustaining facilities would have to die. Yet, members of the unit health care team would be accused of a deed considered equivalent to murder. For autonomy to be accomplished, competence is required, and that is something that varies, passing through different stages. In medical context, a person is competent when he/she is able to understand the basic information about the illness, including prognosis, if she/he is able to understand the treatment suggested, differentiate between the risk and benefit, and come to a rational decision. A partially competent person can, if he/she wants and is able to, reach joint decisions with the rest of the team. If the person is not competent and has not delegated a proxy (representative) and has not provided written instructions for the future, the health care team does not know what the patient would want if competent. Then the team handles according to the principles of doing good and no harm. The role of the "directive for the future" and proxy-decision-makers becomes problematic for the following reasons. By the time when the directives should be implemented many forms of medical treatment have been further developed, so that the illness may have become curable or treatment easier. Older and weak people that need care and feel they pose a burden could feel forced to sign directives for the future if they are legally obligatory.
姑息治疗的目标是在患者临终过程中以及患病之前、期间,为患者及其家人提供尽可能高的生活质量。重点在于团队协作在患者护理各个方面所发挥的作用。生命神圣和个人自主权利的道德原则偶尔可能会产生冲突。尊重生命的基本原则禁止杀戮,出于生存原因,这一点已被所有社会以某种方式所接受。与此类似,现代道德观念支持基于个人知情、自主的人格来尊重自主和自我管理的原则。然而,如果他人的需求似乎比实现某些个人目标更为重要或更可取,那么个人的自主权利可能会被合理限制。关于不应用或终止某些治疗程序的决定,必须基于对治疗性质和预期结果的充分讨论和考量。如果患者无行为能力,那么讨论应包括为患者提供护理的团队以及患者的代表。当医生和团队能够清楚地看到治疗的不利影响将超过治疗益处时,根据尊重受益人的医学伦理,团队没有义务提供那种形式的治疗。除了姑息治疗外,不存在始终具有强制性的医疗治疗。不接受患者安乐死请求的医生并没有限制患者的自主权。自主是自我管理,患者自我终结生命的能力不会因医生的拒绝而受到限制。即便在某些情况下,患者因各种原因表示死亡将是一种解脱,但这并不意味着医生有义务终结生命。医生的首要职责是减轻痛苦。如果安乐死合法化,将会阻碍医学教育领域的工作者,并阻碍他们探索减轻痛苦的新方法。全球范围内姑息治疗的发展进程将会停滞。支持杀戮被禁止这一信念可能会给社会带来益处,而尽管拥有强大的技术手段却禁止“允许死亡”的观念,似乎无法使有益效果最大化。事实上,如果后者成立,那么所有配备了所有可能维持生命设施的重症监护病房的患者都将不得不死亡。然而,该病房的医护团队成员会被指控犯下等同于谋杀的行为。要实现自主,需要具备行为能力,而行为能力会因处于不同阶段而有所不同。在医疗背景下,一个人能够理解关于疾病的基本信息,包括预后,如果他/她能够理解所建议的治疗方法,区分风险和益处,并做出理性决定,那么这个人就具备行为能力。部分有行为能力的人如果愿意并且能够,可以与团队其他成员共同做出决定。如果这个人无行为能力,没有指定代理人(代表),也没有提供关于未来的书面指示,那么医护团队就不知道如果患者有行为能力时会想要什么。然后,团队依据行善和不伤害的原则进行处理。“未来指示”和代理决策者的作用会因以下原因而变得棘手。到需要执行这些指示的时候,许多医疗治疗形式已经进一步发展,以至于疾病可能已可治愈或治疗变得更容易。那些需要护理且觉得自己是负担的年老者和体弱者,如果这些指示具有法律强制性,他们可能会感到被迫签署关于未来的指示。