Reeves P M
School of Social Work, University of Georgia, Athens 30602-7016, USA.
Health Educ Res. 2001 Dec;16(6):709-19. doi: 10.1093/her/16.6.709.
Although identified 20 years ago, HIV/AIDS remains among the most serious disease epidemics of modern times. Because of the stigmatization associated with infection, no health crisis has rivaled HIV/AIDS in underscoring the need for emotional, informational and instrumental support. The critical role that support plays in coping with HIV/AIDS is well documented. Adults with HIV/AIDS have utilized traditional means of support--family, friends and community-based service organizations--in coping with their illness. Recently, however, the Internet has been recognized as a potential avenue for support. Although the Internet may prove promising, little is known about how the wide array of resources available via the Internet is used. The purpose of this study was to investigate how individuals with HIV/AIDS use the Internet in coping with their illness. This research study employed a descriptive qualitative design that used in-depth, semi-structured, face-to-face interviews for data collection. The sample of 10 purposefully selected individuals living with HIV/AIDS reflected diversity in gender, age, race, education, employment, number of years living with HIV/AIDS and Internet use. Data analysis guided by the constant comparative method revealed four themes. Individuals with HIV/AIDS use the Internet for finding information, making social connections, advocating and escaping.
尽管20年前就已发现,但艾滋病毒/艾滋病仍是现代最严重的疾病流行之一。由于与感染相关的污名化,在强调情感、信息和工具性支持的必要性方面,没有任何健康危机能与艾滋病毒/艾滋病相匹敌。支持在应对艾滋病毒/艾滋病方面所起的关键作用已有充分记录。感染艾滋病毒/艾滋病的成年人在应对疾病时利用了传统的支持方式——家庭、朋友和社区服务组织。然而,最近互联网已被视为一种潜在的支持途径。尽管互联网可能前景广阔,但对于如何利用互联网上丰富的资源却知之甚少。本研究的目的是调查感染艾滋病毒/艾滋病的个体如何利用互联网应对疾病。这项研究采用了描述性定性设计,通过深入、半结构化的面对面访谈收集数据。10名经过有目的挑选的感染艾滋病毒/艾滋病的个体样本在性别、年龄、种族、教育程度、就业情况、感染艾滋病毒/艾滋病的年限以及互联网使用情况等方面体现出多样性。以持续比较法为指导的数据分析揭示了四个主题。感染艾滋病毒/艾滋病的个体利用互联网来查找信息、建立社交联系、进行宣传和寻求解脱。