Wertz D C
Division of Social Science, Ethics, and Law, The Shriver Center, 200 Trapelo Road, Waltham, MA 02452.
Community Genet. 1999;2(2-3):51-60. doi: 10.1159/000016187.
To facilitate discussion, this paper describes various types of collections of specimens, their uses in research, types of identifiers, requirements for informed consent, third-party access to samples, recontact, and controversial ethical and social issues. There is need for public opinion research on people's views of these issues, with particular attention to the views of minority groups.
为便于讨论,本文描述了各类样本收集、它们在研究中的用途、标识符类型、知情同意的要求、第三方对样本的访问、再次联系以及有争议的伦理和社会问题。有必要就公众对这些问题的看法开展民意调查,尤其要关注少数群体的观点。