Marelich W D, Johnston Roberts K, Murphy D A, Callari T
Department of Psychology, California State University, Fullerton, CA 92834, USA.
AIDS Care. 2002 Feb;14(1):17-26. doi: 10.1080/09540120220097900.
An assessment of HIV/AIDS patients' involvement in antiretroviral treatment decisions with their health care providers was undertaken. Four focus group interviews were conducted with HIV-positive individuals (N = 39) who were receiving antiretroviral medications at the time of the study. Participants ranged in age from 33 to 54 years, 69% were male, with 44% African-American, 39% White and 12% Latino/other race. Qualitative analyses were used to uncover patterns of patient involvement with their health care providers. Transcripts revealed four primary themes regarding patients' participation with providers in antiretroviral treatment decision making: (1) joint decision making between patients and providers, (2) patients taking control of their drug treatment decisions, (3) initial passivity followed by increased involvement, and (4) patients as knowledge gatherers (revealing where patients get treatment information). HIV/AIDS patients were generally active in making treatment decisions with their providers, garnering information about antiretroviral treatments from a variety of sources including peers, family members, health professionals and the media. Patient passivity in decision-making involvement was found only after initial HIV-positive diagnosis. Implications for patients' apparent empowered position are discussed.
对艾滋病毒/艾滋病患者与医护人员共同参与抗逆转录病毒治疗决策的情况进行了评估。对在研究期间正在接受抗逆转录病毒药物治疗的39名艾滋病毒呈阳性个体进行了四次焦点小组访谈。参与者年龄在33岁至54岁之间，69%为男性，其中44%是非裔美国人，39%是白人，12%是拉丁裔/其他种族。采用定性分析来揭示患者与医护人员互动的模式。访谈记录揭示了患者与医护人员在抗逆转录病毒治疗决策过程中参与的四个主要主题：（1）患者与医护人员共同决策；（2）患者掌控自己的药物治疗决策；（3）最初被动随后参与度增加；（4）患者作为信息收集者（揭示患者获取治疗信息的渠道）。艾滋病毒/艾滋病患者在与医护人员共同做出治疗决策时通常很积极，他们从包括同伴、家庭成员、健康专业人员和媒体在内的各种来源获取有关抗逆转录病毒治疗的信息。仅在最初确诊艾滋病毒呈阳性后发现患者在决策参与方面存在被动情况。讨论了对患者明显的赋权地位的影响。
