Asbring Pia, Närvänen Anna-Liisa
Centre for Development of Health Services, Department of Public Health Sciences at Karolinska Institutet in Stockholm, Sweden.
Qual Health Res. 2002 Feb;12(2):148-60. doi: 10.1177/104973230201200202.
Chronic fatigue syndrome and fibromyalgia are characterized by being difficult to diagnose and having an elusive etiology and no clear-cut treatment strategy. The question of whether these illnesses are stigmatizing was investigated through interviews with 25 women with these illnesses. The women experienced stigmatization primarily before receiving a diagnosis, and the diffuse symptomatology associated with the illnesses were significant for stigmatization. Stigma consisted of questioning the veracity, morality, and accuracy of patient symptom descriptions and of psychologizing symptoms. Coping with stigma was also explored and found to comprise both withdrawal and approach strategies, depending on the individual's circumstances and goals.
慢性疲劳综合征和纤维肌痛的特点是难以诊断，病因不明，且没有明确的治疗策略。通过对25名患有这些疾病的女性进行访谈，调查了这些疾病是否具有污名化现象。这些女性主要在确诊之前经历了污名化，与这些疾病相关的弥漫性症状对污名化有重要影响。污名包括质疑患者症状描述的真实性、道德性和准确性，以及将症状心理化。研究还探讨了应对污名的方式，发现根据个人情况和目标，应对方式包括回避和应对策略。
