Söderberg S, Lundman B, Norberg A
Boden University College of Health Sciences, Sweden.
Qual Health Res. 1999 Sep;9(5):575-87. doi: 10.1177/104973299129122090.
Fibromyalgia (FM) is a common chronic pain syndrome with an obscure etiology, which mostly afflicts middle-aged women. In this study, 14 women with FM were interviewed about the meaning of living with the illness. A phenomenological-hermeneutic method was used to analyze and interpret the interview texts. The findings show that being a woman with FM means living a life greatly influenced by the illness in various ways. The women's experiences of living with FM were presented in three major interlaced themes: loss of freedom, threat to integrity, and a struggle to achieve relief and understanding. This study highlights the importance of meeting people suffering in illness with respect for their human dignity. The care of women with FM must empower the women to bring to bear their own resources so that they can manage to live with the illness.
纤维肌痛（FM）是一种病因不明的常见慢性疼痛综合征，主要困扰中年女性。在本研究中，对14名患有纤维肌痛的女性进行了访谈，询问她们与这种疾病共存的意义。采用现象学诠释学方法对访谈文本进行分析和解读。研究结果表明，身为一名患有纤维肌痛的女性意味着生活在各个方面都受到这种疾病的极大影响。患有纤维肌痛的女性的生活经历呈现为三个主要相互交织的主题：失去自由、对完整性的威胁以及为获得缓解和理解而进行的挣扎。本研究强调了以尊重其人格尊严的方式对待患病者的重要性。对患有纤维肌痛的女性的护理必须使她们能够发挥自身资源，以便她们能够设法与疾病共存。
