Pickett M, Barg F K, Lynch M P
School of Nursing Faculty, Family Caregiver Cancer Education Program, University of Pennsylvania, Philadelphia, USA.
Hosp J. 2001;15(4):19-40.
This article describes a home-based educational program developed specifically for family caregivers of cancer patients who receive hospice and home care. The overall aim of this educational program is to specifically address family caregivers' needs for acquisition of necessary knowledge and skills to meet the physical and psychosocial demands associated with caring for a patient with advanced cancer.
Originally, components of this program were offered in a small group discussion format within hospital and community settings. The educational program was transformed to accommodate the unique needs and constraints of homebound family caregivers who have very limited time and/or opportunities for support and education outside of the home. The program is comprised of educational modules that provide hospice and home care professionals with written and audiovisual materials designed to facilitate brief, structured, educational encounters with family caregivers in the home setting.
Two hundred thirty-seven educational module kits were distributed to professionals affiliated with twenty-four home care and hospice agencies in the Greater Philadelphia area. Results of a telephone survey designed to elicit evaluation data from professional staff members who had used the educational modules are presented. Limitations, plans for future program evaluation, cost implications, and implementation recommendations related to this educational program are described.
本文介绍了一项专门为接受临终关怀和家庭护理的癌症患者的家庭护理人员开发的居家教育项目。该教育项目的总体目标是专门满足家庭护理人员获取必要知识和技能的需求，以应对与照顾晚期癌症患者相关的身体和心理社会需求。
最初，该项目的组成部分以小组讨论的形式在医院和社区环境中提供。该教育项目进行了调整，以适应居家家庭护理人员的独特需求和限制，他们在家外获得支持和教育的时间和/或机会非常有限。该项目由教育模块组成，为临终关怀和家庭护理专业人员提供书面和视听材料，旨在促进在家庭环境中与家庭护理人员进行简短、结构化的教育交流。
向大费城地区24家家庭护理和临终关怀机构的专业人员分发了237套教育模块工具包。本文展示了一项电话调查的结果，该调查旨在从使用过教育模块的专业工作人员那里获取评估数据。描述了该教育项目的局限性、未来项目评估计划、成本影响以及实施建议。
