Fitch M I, Gray R E, Greenberg M, Carroll J, Chart P, Orr V
Toronto-Sunnybrook Regional Cancer Centre, Toronto-Sunnybrook Psycho-Social Behavioural Research Group, Toronto, Ontario.
Can Oncol Nurs J. 2001 Spring;11(2):76-81. doi: 10.5737/1181912x1127681.
During the past decade in North America, the number of self-help groups for cancer patients has grown dramatically. Nurses' knowledge and attitudes about self-help groups could influence their practice behaviours and the information they provide to cancer patients. However, little is known about oncology nurses' views regarding self-help groups. This study used a cross-sectional survey to gather information about knowledge, attitudes, and practice behaviours of Canadian oncology nurses regarding self-help groups. A total of 676 nurses completed the survey (response rate of 61.3%). The respondents had spent, on average, 21.6 years in nursing and 11.6 years in oncology nursing. Results indicated that a large majority of nurses knew about available self-help groups. Approximately one-fifth of the nurses are speaking frequently about self-help groups with patients (20.7%) and are initiating the conversation on a frequent basis (22.0%). Overall, oncology nurses rated self-help groups as helpful with regards to sharing common experiences (79.5%), sharing information (75.6%), bonding (74.0%), and feeling understood (72.0%). The most frequently identified concern regarding the groups was about misinformation being shared (37.9%), negative effects of associating with the very ill (22.1%), and promoting unconventional therapies (21.2%). Implications from the study suggest that oncology nurses would benefit from learning more about the nature of self-help groups and being able to talk with patients about the self-help experience.
在过去十年中，北美地区癌症患者自助团体的数量急剧增加。护士对自助团体的了解和态度可能会影响他们的实践行为以及向癌症患者提供的信息。然而，对于肿瘤学护士对自助团体的看法却知之甚少。本研究采用横断面调查来收集加拿大肿瘤学护士关于自助团体的知识、态度和实践行为的信息。共有676名护士完成了调查（回复率为61.3%）。受访者平均从事护理工作21.6年，从事肿瘤学护理工作11.6年。结果表明，绝大多数护士了解现有的自助团体。约五分之一的护士经常与患者谈论自助团体（20.7%），并经常发起相关话题（22.0%）。总体而言，肿瘤学护士认为自助团体在分享共同经历（79.5%）、分享信息（75.6%）、建立联系（74.0%）和获得理解（72.0%）方面很有帮助。对于这些团体，最常被提及的担忧是错误信息的传播（37.9%）、与重症患者交往的负面影响（22.1%）以及推广非常规疗法（21.2%）。该研究的启示表明，肿瘤学护士将受益于更多地了解自助团体的性质，并能够与患者谈论自助体验。
