Lowes L, Lyne P
Department of Child Health, University Hospital of Wales.
Br J Nurs. 2000;9(9):542-8. doi: 10.12968/bjon.2000.9.9.6288.
Historically, children with diabetes have been hospitalized at diagnosis, but increasingly, newly diagnosed children are being cared for entirely at home. The management of this chronic condition usually involves the whole family, with children often taking responsibility for much of their own care. However, this article focuses specifically on the needs of parents, forming part of an extensive literature review informing a study exploring parents' experience of home management and coping over the first year with childhood diabetes. A search of the literature revealed a scarcity of evidence overall about hospitalization or home management from a parental perspective, and none in relation to childhood diabetes. This article provides a critical appraisal of the appropriateness of these two approaches to care for parents of children with newly diagnosed diabetes. First, a brief introduction to home management in childhood diabetes is followed by an examination of the small amount of research found about home management and hospitalization from the point of view of parents. Then, the possible benefits and disadvantages of both approaches are discussed and subsequently scrutinized in the context of childhood diabetes. Finally, preliminary conclusions are drawn and suggestions made for the direction of future research in this area.
从历史上看,糖尿病患儿在确诊时通常会住院治疗,但现在越来越多新确诊的患儿完全在家中接受护理。这种慢性病的管理通常涉及整个家庭,孩子们往往要对自己的大部分护理负责。然而,本文特别关注父母的需求,这是一项广泛文献综述的一部分,该综述为一项探索父母在孩子患糖尿病的第一年进行家庭管理和应对经验的研究提供了信息。对文献的检索发现,总体而言,从父母角度来看,关于住院治疗或家庭管理的证据很少,与儿童糖尿病相关的证据则完全没有。本文对这两种护理方式对新确诊糖尿病患儿父母的适用性进行了批判性评估。首先,简要介绍儿童糖尿病的家庭管理,然后从父母的角度审视关于家庭管理和住院治疗的少量研究。接着,讨论这两种方式可能的优缺点,并随后在儿童糖尿病的背景下进行仔细审查。最后,得出初步结论,并对该领域未来的研究方向提出建议。