Kuczewski M G
Loyola University Chicago, USA.
Am J Bioeth. 2001 Summer;1(3):36-44. doi: 10.1162/152651601750418026.
Contemporary bioethics has been somewhat skewed by its focus on high-tech medicine and the resulting development of ethical frameworks based on an acute-care model of healthcare. Research and scholarship in bioethics have payed only cursory attention to ethical issues related to disability. I argue that bioethics should concern itself with the full range of theoretical and practical issues related to disability. This encounter with the disability community will enrich bioethics and, potentially, society as well. I suggest a number of items that the bioethics agenda should include, such as the development of a casuistry of the right to healthcare and to community integration and an advocacy role in fostering an understanding among the public and policy makers of the need to reform research and treatment related to disability.
当代生物伦理学在一定程度上因专注于高科技医学以及由此基于急症护理医疗模式发展出的伦理框架而有所偏差。生物伦理学的研究和学术仅粗略关注了与残疾相关的伦理问题。我认为生物伦理学应关注与残疾相关的所有理论和实际问题。与残疾群体的这种接触将丰富生物伦理学，并且可能也会丰富社会。我提出了一些生物伦理学议程应包含的事项，比如制定关于医疗保健权和融入社区权的决疑法，以及在促进公众和政策制定者理解改革与残疾相关的研究和治疗的必要性方面发挥倡导作用。
