Drotar D, Baskiewicz A, Irvin N, Kennell J, Klaus M
Pediatrics. 1975 Nov;56(5):710-7.
To determine the course of parental reactions to the birth of a child with a congenital malformation and the process of parental attachment, the parents of 20 children with a wide range of malformations including mongolism, congenital heart disease, and cleft palate were interviewed. Structured interviews took place 7 days to 60 months after birth. Despite the wide variation of malformations, analysis of the interviews demonstrated five stages of parental reactions--shock, denial, sadness and anger, adaptation, and reorganization--in dealing with a congenitally malformed child during the course of his development and care. Observations of these patients suggest that early crisis counseling in the first months of life may be particularly crucial in parental attachment and adjustment.
为了确定父母对患有先天性畸形孩子出生的反应过程以及亲子依恋过程，我们对20名患有多种畸形（包括唐氏综合征、先天性心脏病和腭裂）孩子的父母进行了访谈。结构化访谈在孩子出生后7天至60个月进行。尽管畸形种类差异很大，但对访谈的分析表明，在患有先天性畸形孩子的成长和照料过程中，父母的反应有五个阶段——震惊、否认、悲伤与愤怒、适应和重新组织。对这些患者的观察表明，在孩子出生后的头几个月进行早期危机咨询，对于亲子依恋和父母调整可能尤为关键。
