Bradbury E T, Hewison J
Withington Hospital, Manchester, UK.
Child Care Health Dev. 1994 Jul-Aug;20(4):251-66. doi: 10.1111/j.1365-2214.1994.tb00388.x.
When a baby is born with a visible disfigurement, then parents need to adjust to the loss of the anticipated 'perfect' child and thus accept their baby. The impact of the birth on the parents is described in the context of a measure which identifies areas of potential difficulty. The two groups studied were parents of children with cleft palates and parents of children with congenital hand deficit. A wide range of adjustment was found. There was no significant difference between the two groups in terms of their overall adjustment, but there were individual differences in adjustment which did not relate to the severity or type of anomaly. The only significant variable found to relate to parental adjustment was perceived family support.
当婴儿出生时伴有明显的身体缺陷，父母就需要适应失去预期中“完美”孩子的现实，从而接纳自己的宝宝。在一项确定潜在困难领域的措施背景下，描述了婴儿出生对父母的影响。所研究的两组对象分别是腭裂患儿的父母和先天性手部缺陷患儿的父母。研究发现，父母的适应情况差异很大。两组在总体适应方面没有显著差异，但在适应方面存在个体差异，这些差异与异常的严重程度或类型无关。唯一被发现与父母适应情况相关的显著变量是感知到的家庭支持。
