Horsburgh M, Trenholme A, Huckle T
Division of Nursing, University of Auckland, PO Box 92019, Auckland, New Zealand.
Palliat Med. 2002 Mar;16(2):99-105. doi: 10.1191/0269216302pm515oa.
This paper reviews relevant international and New Zealand literature, policy documents and reports on respite provision for children who are dying and their families. The literature describes why respite care for children is necessary, and evaluates present respite services in accord with recent reports and literature. The service provisions needed for dying children and their families are explored, including suggestions for the improvement of services and future research. The literature reveals that, although respite care for terminally ill children and their families is necessary, service provisions are uncoordinated, not always culturally sensitive and very limited for children and their families. Improvement in paediatric respite services is necessary and research needs to be conducted in this area to facilitate the development of more appropriate respite services for children and their families.
本文回顾了有关为濒死儿童及其家庭提供喘息照顾的国际和新西兰文献、政策文件及报告。文献阐述了为儿童提供喘息照顾的必要性，并根据近期报告和文献对当前的喘息服务进行了评估。探讨了濒死儿童及其家庭所需的服务提供情况，包括对服务改进及未来研究的建议。文献表明，尽管为身患绝症的儿童及其家庭提供喘息照顾很有必要，但服务提供缺乏协调，并非总是具有文化敏感性，且对儿童及其家庭而言非常有限。儿科喘息服务有必要改进，且需要在该领域开展研究，以促进为儿童及其家庭开发更合适的喘息服务。
