Agre Patricia, Dougherty James, Pirone Jane
Memorial Sloan-Kettering Cancer Center, New York, NY, USA.
Oncol Nurs Forum. 2002 Apr;29(3):573-80. doi: 10.1188/02.ONF.573-580.
PURPOSE/OBJECTIVES: To describe the process of developing a cancer-related patient and family education CD-ROM program and initial evaluation results.
Published research, theory, practice, and personal experience.
CD-ROM programs can be far more comprehensive than the booklets and videotapes used more commonly in patient education. Developing CD-ROM programs requires funding, organizational skills, access to content experts, and a team composed of people who have the varied skills required for a finished multimedia product. The time frame for CD-ROM production is often longer than that of other patient-education formats. Published reports and this institution's experience confirm that patients accept this medium. Evaluation to date suggests that CD-ROMs may be more useful to patients and their families than any other single information source.
CD-ROM technology is more expensive than videotapes and booklets, but it allows for greater depth of content and may satisfy a broader range of educational needs than other media. Funding often can be obtained through foundations and with unrestricted educational grants from pharmaceutical companies.
Nurses can lead multidisciplinary teams to produce CD-ROMs for their patient populations. These programs can be used before a patient has a first consultation to introduce a cancer or treatment and anytime during cancer diagnosis and treatment. They can reinforce one-on-one teaching or provide greater depth of content than ever could be provided in individualized teaching sessions. They can facilitate patients' self-directed learning and may allow nurses and doctors to teach on a different level. These programs also can complement patients' Internet searches either by creating a solid foundation for further investigation or by confirming the reliability of information gained through a variety of Internet sources.
目的/目标：描述开发一个与癌症相关的患者及家属教育光盘程序的过程及初步评估结果。
已发表的研究、理论、实践及个人经验。
光盘程序可比患者教育中更常用的小册子和录像带内容全面得多。开发光盘程序需要资金、组织能力、接触内容专家，以及一个由具备完成多媒体产品所需各种技能的人员组成的团队。光盘制作的时间框架通常比其他患者教育形式要长。已发表的报告及本机构的经验证实患者接受这种媒介。迄今为止的评估表明，对于患者及其家属而言，光盘可能比任何其他单一信息来源都更有用。
光盘技术比录像带和小册子成本更高，但它能提供更深入的内容，并且可能比其他媒体满足更广泛的教育需求。资金通常可通过基金会以及制药公司的无限制教育赠款获得。
护士可带领多学科团队为其患者群体制作光盘。这些程序可在患者首次咨询前用于介绍癌症或治疗方法，也可在癌症诊断和治疗期间的任何时候使用。它们可强化一对一教学，或提供比个别教学课程所能提供的更深入的内容。它们可促进患者的自主学习，并可能使护士和医生能在不同层面进行教学。这些程序还可通过为进一步调查奠定坚实基础或通过确认从各种互联网来源获取的信息的可靠性来补充患者的互联网搜索。
