Garratt Andrew, Schmidt Louise, Mackintosh Anne, Fitzpatrick Ray
National Centre for Health Outcomes Development, Unit of Health-Care Epidemiology, Institute of Health Sciences, University of Oxford, Oxford OX3 7LF.
BMJ. 2002 Jun 15;324(7351):1417. doi: 10.1136/bmj.324.7351.1417.
To assess the growth of quality of life measures and to examine the availability of measures across specialties.
Systematic searches of electronic databases to identify developmental and evaluative work relating to health outcome measures assessed by patients.
Types of measures: disease or population specific, dimension specific, generic, individualised, and utility. Specialties in which measures have been developed and evaluated.
3921 reports that described the development and evaluation of patient assessed measures met the inclusion criteria. Of those that were classifiable, 1819 (46%) were disease or population specific, 865 (22%) were generic, 690 (18%) were dimension specific, 409 (10%) were utility, and 62 (1%) were individualised measures. During 1990-9 the number of new reports of development and evaluation rose from 144 to 650 per year. Reports of disease specific measures rose exponentially. Over 30% of evaluations were in cancer, rheumatology and musculoskeletal disorders, and older people's health. The generic measures--SF-36, sickness impact profile, and Nottingham health profile--accounted for 612 (16%) reports.
In some specialties there are numerous measures of quality of life and little standardisation. Primary research through the concurrent evaluation of measures and secondary research through structured reviews of measures are prerequisites for standardisation. Recommendations for the selection of patient assessed measures of health outcome are needed.
评估生活质量测量方法的发展情况，并研究各专业领域中这些测量方法的可获得性。
对电子数据库进行系统检索，以识别与患者评估的健康结局测量方法相关的开发和评估工作。
测量方法的类型：疾病或特定人群、特定维度、通用、个体化和效用性。已开发和评估测量方法的专业领域。
3921篇描述患者评估测量方法开发和评估的报告符合纳入标准。在可分类的报告中，1819篇（46%）是疾病或特定人群的，865篇（22%）是通用的，690篇（18%）是特定维度的，409篇（10%）是效用性的，62篇（1%）是个体化测量方法。在1990 - 1999年期间，每年新的开发和评估报告数量从144篇增至650篇。疾病特异性测量方法的报告呈指数增长。超过30%的评估涉及癌症、风湿病和肌肉骨骼疾病以及老年人健康。通用测量方法——SF - 36、疾病影响概况和诺丁汉健康概况——占612篇（16%）报告。
在某些专业领域，有众多生活质量测量方法且标准化程度低。通过对测量方法的同步评估进行的初级研究以及通过对测量方法的结构化综述进行的二级研究是标准化的前提条件。需要针对患者评估的健康结局测量方法的选择提出建议。
