Lubetkin Erica I, Gold Marthe R
Department of Community Health and Social Medicine, The City University of New York Medical School, New York 10031, USA.
J Natl Med Assoc. 2002 May;94(5):327-35.
Although the use of self-administered measures of health-related quality of life has increased, their performance in minorities and persons of low socioeconomic status is largely unknown. This cross-sectional study assessed participation rates, comprehensibility, and overall scores for three generic measures of health status--the Short Form-12, EuroQol EQ-5D, and Health Utilities Index Mark 2/3. Participants at an inner-city community health center completed demographic questions, the measures, and questions regarding the comprehensibility and relevance of the measures. Three hundred ninety-three persons were approached, and 301 (77%) agreed to participate: 51% were Latino and 32% were African American. Sixty-eight percent of participants earned $15,000 or less, and 46% had a high school education or lower. Seventeen percent of participants required assistance on one or more item, but most sought clarification for only one item. Participants' responses on similar questions from two different measures were consistent (kappa = .65), and overall scores for the three measures were moderately or strongly correlated, ranging from r = .41 to r = .69. Mean scores were lower than published population norms. Participants were able to complete the self-administered measures and appeared to comprehend the measures. Responses from the measures yielded apparently valid results, and scores are likely to be lower than higher socioeconomic status populations. Mean scores were comparable to scores of persons with chronic diseases. The results suggest that these measures may be successfully used in characterizing the health of minority and low-income populations.
尽管自行管理的健康相关生活质量测量方法的使用有所增加，但其在少数族裔和社会经济地位较低人群中的表现仍 largely 未知。这项横断面研究评估了三种通用健康状况测量方法的参与率、可理解性和总体得分，即简短形式-12、欧洲生活质量五维度问卷（EQ-5D）和健康效用指数Mark 2/3。一家市中心社区健康中心的参与者完成了人口统计学问题、这些测量方法以及关于这些测量方法的可理解性和相关性的问题。共接触了393人，301人（77%）同意参与：51%为拉丁裔，32%为非裔美国人。68%的参与者年收入为15,000美元或以下，46%的人具有高中或以下学历。17%的参与者在一个或多个项目上需要帮助，但大多数人仅就一个项目寻求澄清。参与者对两种不同测量方法中类似问题的回答是一致的（kappa系数=0.65），并且这三种测量方法的总体得分具有中度或强相关性，范围从r=0.41至r=0.69。平均得分低于已发表的总体规范。参与者能够完成自行管理的测量方法，并且似乎理解这些测量方法。这些测量方法的回答产生了明显有效的结果，并且得分可能低于社会经济地位较高的人群。平均得分与慢性病患者的得分相当。结果表明，这些测量方法可能成功用于描述少数族裔和低收入人群的健康状况。
